If you’re raising a child with special health care needs, you might find that "me time" is more fantasy than reality. Sure, you'd love some time to yourself, or one-on-one time with a spouse, partner, friend, or another child. But how can you find that perfect person to care for your child? And even then, can you trust someone else to provide just what your child needs?
Luckily, finding respite care — a well-deserved break from caregiving — with a skilled and caring person that you trust might be easier than you think.
The many types of respite care include:
Another option that families enjoy is respite care offered through parent "co-ops." This is when families take turns watching each other's kids. For example, you can take someone else's child for one day or evening a month, and that person can do the same for you. Support groups for families with your child's condition are a good place to meet other families.
You also might consider asking for help from extended family, friends, or neighbors, and give them the training they need to care for your child.
Special health care needs usually require care beyond what the average babysitter can offer. Here are some ways to find experienced caregivers:
These groups offer help and information, and may have chapters in your area:
Once you've narrowed your search and decided on a person or program, do a telephone interview. Ask caregivers if they've had background and reference checks. Make a list of all your child's needs, from toileting to communicating, and make sure the caregiver has the skills to handle them. Ask to meet in person, and watch how the caregiver interacts with your child.
Call the applicant's references and ask about the caregiver. Were there things the caregiver did that they didn't like? Keep interviewing and asking questions until you find someone you feel truly comfortable with.
Respite care can be costly, but there are programs that can help. They include:
For help figuring out which respite services your child may be eligible for, talk to your social worker or contact your local Family Voices chapter.
Once you find respite care for your child, you’ll wonder how you ever lived without it. Having an extra set of hands so that you can run errands, go to an appointment, or just take a break works wonders for your mental health. You'll feel better and have more energy to do the things you need to do for your child and family.
Reviewed by: Carolyn Sewell-Roberts, LCSW
Date Reviewed: Sep 20, 2021