Haslinger Family Pediatric Palliative Care Center
Our nationally recognized program has served as a model for other organizations in providing care to children with complex, chronic or serious medical conditions. Our goal is to enhance your and your child's quality of life in partnership with cure-directed care.
We offer specialized medical care for children with serious illnesses, including genetic disorders, cancer, prematurity, neurologic disorders, and heart and lung conditions. We focus on relieving symptoms, pain and stress of a serious illness and improving quality of life for both your child and family.
We also help with communication and coordination of care. With the close communication we provide, you're better able to choose options that are in line with your values, traditions and culture. This improves the well-being of the entire family. Our team includes
- Pediatric palliative care physicians
- Advanced practice providers
- Nurse case managers
- Social workers
- Bereavement coordinator
- Chaplain
- Child life specialists
- Expressive therapists
- Physical and occupational therapists
- Psychologists
- Pharmacists
- Dietitian
- Trained volunteers
We care for children of all ages from prenatal to young adult, as well as adults in our Adult and Pediatric Burn Institute.
We personalize care for each child and family, by allowing you to choose from a variety of available services, according to your needs. We have found our care to be most beneficial when we begin the journey with the family at the time of diagnosis and continue with them for as long as they may need.
A terminal diagnosis is not required. We care for children with both cancer and non-cancer diagnoses such as leukodystrophy, congenital heart disease, cerebral palsy and mitochondrial disease. Our palliative care program is also appropriate when:
- A complex illness is causing fragmented care, making communication and coordination difficult for a child's health care providers
- Families need additional support and resources
- Children can benefit from expert pain and/or symptom management
- Families would benefit from increased home-based services
- Usual treatment methods are no longer effective or are increasingly burdensome
- Hospital stays are becoming more frequent
- A patient's condition is declining
We also provide leadership in education, research and advocacy initiatives in pediatric palliative care locally, regionally, nationally and internationally.
