Haslinger Family Pediatric Palliative Care Center
Includes specialty programs: Addiction Services Program
Overview
Our nationally recognized program has served as a model for other organizations in providing care to children, from prenatal to young adult, with complex, chronic or serious medical conditions. Our goal is to enhance your and your child's quality of life in partnership with cure-directed care.
Specialized Care
We offer specialized medical care for children with serious illnesses, including genetic disorders, cancer, prematurity, neurologic disorders, and heart and lung conditions. We focus on relieving symptoms, pain and stress of a serious illness and improving quality of life for both your child and family.
We also help with communication and coordination of care. With the close communication we provide, you're better able to choose options that are in line with your values, traditions and culture. This improves the well-being of the entire family.
Team Approach
It takes a specialized team to address the physical, social and emotional aspects of caring for a child with serious medical issues. Not only do we help control pain and other symptoms, we provide support for emotional, psychological, practical, spiritual, educational and developmental issues that may contribute to suffering or interfere with healing.
Our Team Includes:
- Pediatric palliative care physicians
- Advanced practice providers
- Nurse case managers
- Social workers
- Bereavement coordinator
- Chaplain
- Child life specialists
- Expressive therapists
- Physical and occupational therapists
- Psychologists
- Pharmacists
- Dietitian
- Trained volunteers
We work in collaboration with your child’s other healthcare providers and specialists to provide seamless care coordination and communication and help you in making informed choices about difficult medical decisions.
We personalize care for each patient and family, by allowing you to choose from a variety of available services, according to your needs.
When a child faces a chronic condition or a serious illness, families often feel as if life has become a roller coaster ride. We're here to provide support along the journey, no matter what the outcome may be.
Types Of Patients:
Our palliative care program is appropriate when:
- A complex illness is causing fragmented care, making communication and coordination difficult for a child's healthcare providers
- Families are in need of additional support and resources
- Patients can benefit from expert pain and/or symptom management
- Families would benefit from increased home-based services
- A child is facing a shortened life expectancy
- Usual treatment methods are no longer effective or are increasingly burdensome
- Hospital stays are becoming more frequent
- A child's condition is declining
Even if your child is in a neonatal or pediatric intensive care unit, or in an acute care setting, he or she can benefit from the pain control, symptom management, care coordination or additional family support offered through our program.
A terminal diagnosis is not required. We care for children with both cancer and non-cancer diagnoses such as leukodystrophy, congenital heart disease, cerebral palsy and mitochondrial disease.
We have found our care to be most beneficial when we begin the journey with the family at the time of diagnosis and continue with them for as long as they may need.
Advancing Pediatric Palliative Care
Our center has earned The Joint Commission's Gold Seal of Approval by demonstrating compliance with the commission's national standards for healthcare quality and safety in pediatric palliative care.
We strive to integrate legendary, indispensable and individualized pediatric palliative care into the journey for all children, adults and their families living with chronic, complex and/or life-threatening conditions of childhood. We also provide leadership in education, research and advocacy initiatives in pediatric palliative care locally, regionally, nationally and internationally.
Locations/Contact Us
Contact Palliative Care
Akron Children's Hospital Specialty Care
Considine Professional Building
215 W. Bowery St.
Suite 6200
Level 6
Akron, Ohio 44308
Fax: 330-543-3539
More about this location...
Map & directions
Akron Children's Hospital Specialty Care
6505 Market St.
Building A, Suite 1210
Boardman, Ohio 44512
More about this location...
Map & directions
Our Doctors/Providers
Director, Pediatric Palliative Care; Pediatric Palliative Care Physician; Sarah Elizabeth Friebert, M.D. Leadership Chair in Pediatric Palliative Care
Mallory Zehe, PsyD
Pediatric Psychologist
Daniel Phillips, MSN, APRN-CNP
Pediatric Nurse Practitioner; Pediatric Primary Care Mental Health Specialist
Specialty Programs
Open Clinical Studies
Reiki Therapy for symptom management
Reiki therapy is a light touch, non-invasive technique. The study looks at the effects of Reiki therapy on pain, heart rate, respiratory rate, stress, and quality of life in children ages 1 to 5. We hope to provide evidence that Reiki therapy is relaxing and beneficial for children and can improve their quality of life.
More about this study...
Currently recruiting
Family Bereavement within Akron Children's Hospital
The purpose of this study is to learn about adjustment difficulties in bereaved families whose child or sibling was in Pediatric Palliative Care (PPC). We will be comparing families who have Palliative Care involvement and those that do not. This study will allow us to understand the benefits of PPC for bereaved families. We will also be able to investigate other factors such as alcohol use, coping, religion, social support, child-parent conflict, and martial conflict that could lead to positive or negative outcomes of bereaved families. The results from this study will used to develop better family-focused interventions for bereaved families.
More about this study...
Currently recruiting
Teaching Parents Reiki Therapy
Teaching parents reiki for their adolescents receiving palliative care.
More about this study...
Currently recruiting
SHARE Pediatric Palliative Care Study
A study designed to look at patient symptoms, parent distress, goals of care, and hospital cost trajectories.
More about this study...
Currently recruiting
Palliative Care Funds
Whether suffering is physical, emotional, social, spiritual or practical, Akron Children’s Hospital’s palliative care team provides treatment to relieve symptoms and conditions that cause distress and detract from a child’s enjoyment of life.
Help support this important program by donating to one of the funds benefitting the Haslinger Family Center for Pediatric Palliative Care.
- Colin James Carr Endowment Fund supports bereavement services and programs.
- Courage for Carina Gift Card Fund provides funds to purchase gift cards for use by patients and/or families for groceries, clothing, gasoline, etc. Visit courageforcarina.org for more information.
- Cushwa Family Pediatric Palliative Care Fund supports department staff with the intent on enhancing provision of home-based services for patients with life-threatening illness and their families.
- Austin Michael Davis Memorial Endowment Fund provides funding to support and enhance the projects and services of the Palliative Care Center.
- Sarah Elizabeth Friebert, MD, Leadership Chair in Pediatric Palliative Care Fund supports the director of the Haslinger Family Pediatric Palliative Care Center.
- Sarah Elizabeth Friebert, MD, Leadership I Pediatric Palliative Care Fund #2 provides funds to help support the Director of the Pediatric Palliative Care Center.
- The Lauren Ellen Gartner, Forever in Our Hearts, Memorial Fund supports the Expressive Therapy Program.
- Haslinger Family Pediatric Palliative Care Center Fund helps defray unreimbursed costs associated with the center.
- Manny Rodriguez Patient Safety Education Fund supports the efforts to reduce or eliminate medical errors and improve patient safety.
- The Stan and Roberta Marks Music Therapy Fund helps fund the music therapy program within the Emily Cooper Welty Expressive Therapy Center at Akron Children’s Hospital.
- Palliative Care General Fund provides support for equipment, supplies and education.
- Pediatric Palliative Care Education Fund supports programs, activities and supplies (equipment, books, travel, etc.) deemed beneficial to enhancing the education of the Pediatric Palliative Care team members, including those specializing in medicine, nursing, bereavement, case management, psychosocial support (social work, psychology, child life, spiritual care), nutrition, rehabilitation therapy, expressive therapy, and others.
- The Pediatric Palliative Care (PPC) Family Fund assists families coping with the extreme financial stress of caring for children who have complex, chronic or serious medical conditions. The fund helps families with groceries and nutritional needs, transportation assistance, burial expenses and household expenses, primarily for families who do not meet the financial requirements of other assistance programs. Special items or experiences can also be funded for siblings. Visit ppcfamilyfund.org for more information.
- River of Life Fund supports families coping with the extreme financial stress of caring for a child with a complex, chronic or serious medical condition and assists with urgent expenses to allow families to stay at their child's bedside during a catastrophic illness.
- The Hazel L. McKenna Memorial Fund provides support for bereavement, equipment and supplies for outpatient or inpatient use (when hospital resources are not available), as well as education, research and patient support.
Educational Opportunities
The Haslinger Family Pediatric Palliative Care Center offers a variety of educational opportunities for students.
A 1-year or 2-year Fellowship is offered to physicians who have completed an accredited residency in pediatrics, IM/peds or family practice and wish to subspecialize in Pediatric Palliative Care.
A 4-week elective is offered to palliative care fellows in other accredited programs to enhance their pediatric knowledge.
A 4-week elective is offered to residents in accredited training programs.
A 4-week elective is offered to 4th-year medical students in accredited programs.
Shadowing experiences are offered to trainees in other programs or at other levels.
Learn more about educational opportunities for Residents and Students:
Pediatric Palliative Care Fellowship
