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Neurofibromatosis (NF) Clinic

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Neurofibromatosis type 1 (NF1) is one of the most common genetic disorders, affecting approximately 1 in 3,000 individuals. Children with NF1 frequently have noncancerous tumors on their skin, but it can also affect other organ systems, such as your child’s skeletal, cardiovascular and nervous systems.

To help manage this complex condition, Akron Children’s has created a one-day neurofibromatosis (NF) clinic with specialists from developmental/behavioral pediatrics, genetics, neurology, oncology and ophthalmology. Other specialists are also available to support your child’s individual needs.

If your child has NF1, they may experience frequent headaches, uncontrolled seizures, ADHD, skeletal abnormalities, blood pressure issues, gastrointestinal problems and other conditions requiring the care of numerous specialists. These symptoms may also change as your child grows. They may also require chemotherapy or surgery.

Patients are seen from birth to age 25. New cases are accepted until age 21. The NF clinic also provides coordinated care for children with similar conditions. This includes NF2, which is less common than NF1 and usually diagnosed in early adolescence, and schwannomatosis, a condition that causes a different type of noncancerous tumor.

Locations

Contact Neurofibromatosis (NF) Clinic

330-543-8050 Appointments
330-543-2778

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NeuroDevelopmental Science Center
Akron Children's NeuroDevelopmental Science Center, Akron
Considine Professional Building
215 West Bowery Street
Level 4
Akron, Ohio 44308
Fax: 330-543-8054
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Map & directions

Our Doctors/Providers

Physicians/Providers:

Jacqueline Branch, MD, FAAP

Developmental/Behavioral Pediatrician

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Matthew Ginsberg, MD

The James F. and Marguerite A. Pearson Endowed Chair in NeuroDevelopmental Sciences for Rare Diseases; Pediatric Neurologist

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Ryan Heksch, MD

Pediatric Endocrinologist; Associate Program Director, M & M Conference and Residency Teaching Elective

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Jason Laufman, MD, FACMGG

Geneticist

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William Lawhon, MD

Pediatric Ophthalmologist

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Stephen Steiner, MD, PhD

Pediatric Neurologist

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Erin Wright, MD

Director, Neuro-Oncology; Director, Shannon E. Wilkes Targeted Therapy Program; Co-Director, Neurofibromatosis Clinic; Pediatric Neuro-Oncologist

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Nurse Practitioners/Physician Assistants:

Alexis Judd, PA-C

Physician Assistant

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Other Providers:

Kaylee Kandel, MS, CGC

Licensed, Certified Genetic Counselor

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Some of the Conditions We Treat...

Neurofibromatosis type 1, NF1, neurofibromatosis type 2, NF2, schwannomatosis



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