The Severe Chronic Neutropenia International Registry (SCNIR)
Full IRB Study Title:
Severe Chronic Neutropenia International Registry Protocol
IRB Study ID: 971382-1
This registry is to establish a global database of treatment and disease-related outcomes for persons diagnosed with SCN. Collection of this information will lead to improved medical care and is used for research to determine the causes of neutropenia.
Who May Qualify:
Patients with a confirmed diagnosis of severe chronic neutropenia based on documented absolute neutrophil counts of less than 0.5x109/L on at least three occasions in the three months prior to enrollment.
Who Does NOT Qualify:
Patients without a diagnosis of severe chronic neutropenia.
Lead Investigator
Jeffrey Hord, MD
Director, Division of Hematology-Oncology; Pediatric Hematologist-Oncologist; LOPen Charities and Mawaka Family Chair in Pediatric Hematology/Oncology; Vice President, American Society of Pediatric Hematology/ Oncology 2023-2024
Showers Family Center for Childhood Cancer and Blood DisordersHemostasis and Thrombosis Center
