The goal of this study is to monitor long term-outcomes of patients with Marfan Syndrome who receive surgical treatment for scoliosis, and patients who choose not to have surgery.
Patients aged 10-21 years diagnosed with Marfan Syndrome and spinal deformity.
Patients >21 years of age
Setting Scoliosis Straight Foundation/Harms Study Group
Chair, Department of Orthopedics; Director, Spine Center; Pediatric Orthopedic Surgeon
Fracture ClinicOrthopedicsPediatric Neuromuscular ClinicSpine Center
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