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The Severe Chronic Neutropenia International Registry (SCNIR)

The Severe Chronic Neutropenia International Registry (SCNIR)

Description:

This registry is to establish a global database of treatment and disease-related outcomes for persons diagnosed with SCN. Collection of this information will lead to improved medical care and is used for research to determine the causes of neutropenia.

SCNIR website.

 

Who May Qualify?:

Patients with a confirmed diagnosis of severe chronic neutropenia based on documented absolute neutrophil counts of less than 0.5x109/L on at least three occasions in the three months prior to enrollment.

Who Does Not Qualify:

Patients without a diagnosis of severe chronic neutropenia.

Interested in participating?
We are currently recruiting
Full IRB Study Title:
Severe Chronic Neutropenia International Registry Protocol
IRB Study ID:
971382-1
If you are interested in this study or have questions about your child's eligibility, please contact:
Rebecca D. Considine Research Institute, 330-543-3193 or email research@akronchildrens.org
Lead Investigator
Jeffrey Hord, MD

Director, Division of Hematology-Oncology; Pediatric Hematologist-Oncologist; LOPen Charities and Mawaka Family Chair in Pediatric Hematology/Oncology (Honoring Dr. Jeffrey Hord)
Showers Family Center for Childhood Cancer and Blood DisordersHemostasis and Thrombosis Center