This registry is to establish a global database of treatment and disease-related outcomes for persons diagnosed with SCN. Collection of this information will lead to improved medical care and is used for research to determine the causes of neutropenia.
Patients with a confirmed diagnosis of severe chronic neutropenia based on documented absolute neutrophil counts of less than 0.5x109/L on at least three occasions in the three months prior to enrollment.
Patients without a diagnosis of severe chronic neutropenia.
Director, Division of Hematology-Oncology; Pediatric Hematologist-Oncologist; LOPen Charities and Mawaka Family Chair in Pediatric Hematology/Oncology; Vice President, American Society of Pediatric Hematology/ Oncology 2023-2024
Showers Family Center for Childhood Cancer and Blood DisordersHemostasis and Thrombosis Center