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Teens Living with Cancer

Building Evidence for Effective Palliative/End of Life Care for Teens With Cancer (FACE-TC)

Description:

We want to learn how teenagers and young adults with cancer feel about discussing future treatment options with family members.  The study will help those with cancer and their families make future care planning decisions to share with their doctor. 

We will also evaluate if writing patient care goals (advance directives) helps improve quality of life for these teens. The study encourages teenagers and parents to plan future care early in the course of their illness.

For more information on this study, visit:

https://clinicaltrials.gov/ct2/show/NCT02693665?term=FACE-TC&rank=1

Who May Qualify?:

People diagnosed with cancer who: 

  • are between the ages of 14 to 20 years
  • are aware of their current disease status
  • Have a parent or legal guardian willing to participate
Who Does Not Qualify:

Teens who:

  • have developmental delays
  • are in foster care
  • are severely depressed
  • do not speak English
Interested in participating?
We are currently recruiting
Study Sponsor:

Maureen Lyon PhD, ABPP Children’s National Medical Center

Full IRB Study Title:
Building Evidence for Effective Palliative/End-of-Life Care for Teens with Cancer (FACE-TC)
IRB Study ID:
150605
If you are interested in this study or have questions about your child's eligibility, please contact:

Rebecca D. Considine Research Institute, 330-543-3193 or email research@akronchildrens.org

Lead Investigator
Sarah Elizabeth Friebert, MD

Director, Pediatric Palliative Care; Pediatric Palliative Care Physician; Sarah Elizabeth Friebert, M.D. Leadership Chair in Pediatric Palliative Care
Haslinger Family Pediatric Palliative Care Center