A study designed to look at patient symptoms, parent distress, goals of care, and hospital cost trajectories.
Patients receiving palliative care and their parents.
Patients not receiving palliative care.
Haslinger Family Pediatric Palliative Care Program 330-543-3343
Director, Pediatric Palliative Care; Pediatric Palliative Care Physician; Sarah Elizabeth Friebert, M.D. Leadership Chair in Pediatric Palliative Care
Haslinger Family Pediatric Palliative Care CenterPediatric Neuromuscular ClinicMitochondrial Center
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