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SHARE Pediatric Palliative Care Study


A study designed to look at patient symptoms, parent distress, goals of care, and hospital cost trajectories.

Who May Qualify?:

Patients receiving palliative care and their parents.

Who Does Not Qualify:

Patients not receiving palliative care.

Study Status:
Study Sponsor:
  • National Institutes of Health
  • National Institute of Nursing Research
  • Children’s Hospital of Philadelphia
Full IRB Study Title:
Pediatric Palliative Care Research Network SHARE Study
IRB Study ID:
If you are interested in this study or have questions about your child's eligibility, please contact:

Haslinger Family Pediatric Palliative Care Program 330-543-3343

Lead Investigator
Sarah Elizabeth Friebert, MD

Pediatric Palliative Care Physician; Sarah Elizabeth Friebert, M.D. Leadership Chair in Pediatric Palliative Care
Haslinger Family Pediatric Palliative Care CenterPediatric Neuromuscular ClinicMitochondrial Center

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