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SHARE Pediatric Palliative Care Study

Description:

A study designed to look at patient symptoms, parent distress, goals of care, and hospital cost trajectories.

Who May Qualify?:

Patients receiving palliative care and their parents.

Who Does Not Qualify:

Patients not receiving palliative care.

Study Status:
Closed
Study Sponsor:
  • National Institutes of Health
  • National Institute of Nursing Research
  • Children’s Hospital of Philadelphia
Full IRB Study Title:
Pediatric Palliative Care Research Network SHARE Study
IRB Study ID:
1372251
If you are interested in this study or have questions about your child's eligibility, please contact:

Haslinger Family Pediatric Palliative Care Program 330-543-3343

Lead Investigator
Sarah Elizabeth Friebert, MD

Director, Pediatric Palliative Care; Pediatric Palliative Care Physician; Sarah Elizabeth Friebert, M.D. Leadership Chair in Pediatric Palliative Care
Haslinger Family Pediatric Palliative Care CenterAddiction Services ProgramPediatric Neuromuscular ClinicMitochondrial Center

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About Akron Children's

While we are ranked among the best children's hospitals in the country, it's our compassionate approach to treatment that makes us truly exceptional. Through a combination of revolutionary treatments and extraordinary patient experiences, our care does more than heal. It brings the entire family together for emotional support and understanding across multiple locations to reach you in the community where you live. Learn more...

Akron Children's Hospital
One Perkins Square, Akron, Ohio 44308-1062
330-543-1000 • webmaster@akronchildrens.org
An Equal Opportunity Employer
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