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Akron Children's Hospital > For Families & Patients > Research > Pediatric Clinical Studies > Open Clinical Studies

Family Bereavement Study

Family Bereavement within Akron Children's Hospital

Description:

The purpose of this study is to learn about adjustment difficulties in bereaved families whose child or sibling was in Pediatric Palliative Care (PPC).  We will be comparing families who have Palliative Care involvement and those that do not.  This study will allow us to understand the benefits of PPC for bereaved families.  We will also be able to investigate other factors such as alcohol use, coping, religion, social support, child-parent conflict, and marital conflict that could lead to positive or negative outcomes of bereaved families. The results from this study will be used to develop better family-focused interventions for bereaved families.  

Who May Qualify?:
  • Parents and siblings (over the age of 8) of a child who has died.
  • Parents whose primary language is English.
Who Does Not Qualify:
  • Non-English speaking families.
  • Families whose siblings are all under the age of 8.
Study Status:
Closed
Full IRB Study Title:
Family Bereavement within Akron Children's Hospital Study
IRB Study ID:
120204
If you are interested in this study or have questions about your child's eligibility, please contact:
Rebecca D. Considine Research Institute, 330-543-3193 or email research@akronchildrens.org
Lead Investigator
Sarah Elizabeth Friebert, MD

Director, Pediatric Palliative Care; Pediatric Palliative Care Physician; Sarah Elizabeth Friebert, M.D. Leadership Chair in Pediatric Palliative Care
Haslinger Family Pediatric Palliative Care CenterAddiction Services ProgramPediatric Neuromuscular ClinicMitochondrial Center

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