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My Life Our Future: A Hemophilia Data and Sample Research Repository and Hemophilia Genotyping Initiative

My Life Our Future: A Hemophilia Data and Sample Research Repository

Description:

My Life, Our Future (MLOF) is dedicated to improving the lives of people affected by hemophilia through knowledge. Our goals are to enable people with hemophilia and their families to understand more about their hemophilia and to advance scientific research that may improve care and treatment. For complete information, please visit their page:

http://www.mylifeourfuture.org/

Who May Qualify?:

Patients with a confirmed bleeding disorder and a current patient at Akron Children’s Hospital Hemostasis and Thrombosis Center.

Who Does Not Qualify:

Patients without confirmed diagnosis of bleeding disorders.

Study Status:
Closed
Full IRB Study Title:
My Life Our Future: A Hemophilia Genotyping Initiative Data and Sample Research Repository
IRB Study ID:
140902
If you are interested in this study or have questions about your child's eligibility, please contact:
Rebecca D. Considine Research Institute, 330-543-3193 or email research@akronchildrens.org
Lead Investigator
John Fargo, DO

Director, Hemostasis and Thrombosis Center; Director, Divisional Quality Improvement; Pediatric Hematologist-Oncologist
Showers Family Center for Childhood Cancer and Blood DisordersHemostasis and Thrombosis Center

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