Research - Open Studies
Carefully planned and closely monitored, studies run the gamut in terms of what is required from patients or parents. Some are as simple as asking a parent (or child) to complete a survey. Other studies may require diagnostic tests, entering information in a home diary, or periodic visits to the hospital.
Should you find a study that might help your child, learn as much as possible about the study’s purpose and the activities involved. Find out what you will be asked to do. Write down your questions. The doctor leading the study, or a qualified study team member, will explain the study in detail. If you don’t understand, continue to ask for further explanation.
Contact the Research Institute at 330-543-3193 for more information on a study.
- Safety and Efficacy of Nexium in Pediatric Patients with Erosive Esophagitis Currently recruiting
- Somapacitan Once a Week with Daily Norditropin® in Children Who Need Help to Grow Currently recruiting
- IBD ImproveCareNow Registry - working to improve the care and health of children with inflammatory bowel disease Currently recruiting
- A study evaluating the safety and efficacy of Debio 4326 in treating precocious puberty in children receiving gonadotropin-releasing hormone agonist Currently recruiting
- Dupixent in post-burn pruritus Currently recruiting
- Biomarkers in Tumor Samples From Patients With Newly Diagnosed Neuroblastoma or Ganglioneuroblastoma Currently recruiting
- The Project: Every Child Protocol: A Registry, Eligibility Screening, Biology and Outcome Study Currently recruiting
- Neuropsychological, Social, Emotional, and Behavioral Outcomes in Children With Cancer
- Selumetinib in Treating Young Patients With Recurrent or Refractory Low Grade Glioma Currently recruiting
- Guided Therapy in Treating Younger Patients With Non-high Risk Neuroblastoma Currently recruiting
- Maintenance Chemotherapy or Observation Following Induction Chemo and Radiation for Ependymoma Currently recruiting
- Study to determine the safety and tolerability of SNDX-5613 in patients with relapsed/refractory leukemia Currently recruiting
- Genetic Analysis Identifying Late Occurring Complications in Childhood Cancer Survivors (ALTE03N1) Currently recruiting
- Safety and efficacy of Ravulizumab for pediatric patients with thrombocytic microangiopathy following hematopoetic stem cell transplantation Currently recruiting
- A Study to Test the Addition of the Drug Cabozantinib to Chemotherapy in Patients With Newly Diagnosed Osteosarcoma Currently recruiting
- Studying the Effect of Levocarnitine in Protecting the Liver From Chemotherapy for Leukemia or Lymphoma Currently recruiting
- Effects of Dexrazoxane Hydrochloride on Biomarkers Associated With Cardiomyopathy and Heart Failure Currently recruiting
- Genes that influence the way your body responds to infection Currently recruiting
- STOP 360: Standardizing Treatments for Pulmonary Exacerbations: A platform for evaluating treatment decisions to improve outcomes Currently recruiting
- Recovery after ECMO in children with Acute Respiratory Distress Syndrome Currently recruiting
- Medical device study for patients with a rare kidney disease (Focal Segmental Glomerulosclerosis) Currently recruiting
- Safety and efficacy of ASP0367 in patients with primary mitochondrial myopathy Currently recruiting
- Efficacy of KL1333 in adult patients with primary mitochondrial disease Currently recruiting
- Safety and Efficacy of REN001 in patients with Primary Mitochondrial Myopathy Currently recruiting
- Alpers Huttenlocher Natural History Study (Alpers) Currently recruiting
- Single vs. Multiple Privigen Dose Regimens in Pediatric CIDP Currently recruiting
- North American Mitochondrial Disease Consortium Patient Registry and Biorepository (NAMDC) Currently recruiting
- Safety and efficacy of Rimegepant for the treatment of migraine in pediatric patients ≥6 to <18 years of age Currently recruiting
- Study of CAP-1002 in Ambulatory and Non-Ambulatory Patients With Duchenne Muscular Dystrophy Currently recruiting
- Assessment of reachable workspace in patients with Brachial Plexus (BP) or Cerebral Palsy (CP) Currently recruiting
- Motion Capture to Assess Function of Upper Extremities in Typically Developing Children Currently recruiting
- ROCK Prospective Cohort Study for Osteochondritis Dissecans of the Knee Currently recruiting
- Safety and efficacy of MACI in Patients with Chondral or Osteochondral Knee Defects (PEAK) Currently recruiting
- Assessment of reachable workspace in patients undergoing elbow or shoulder surgery Currently recruiting
- Prospective Database Registry of Scoliosis in Children with Cerebral Palsy Currently recruiting
- Study of Scoliosis Correction in patients with Marfan Syndrome Currently recruiting
- Pediatric Spine Registry Currently recruiting
- Prospective Database Registry of Scheuermann's Kyphosis Currently recruiting
- Scoliosis Outcomes Database Registry Currently recruiting
- Safety and Efficacy of Subdermal Betadine During Posterior Spinal Fusion Currently recruiting
- Implementation of a US/Canadian Diagnostic Registry of Children with Chronic Vasculitis Currently recruiting
- The CARRA Registry for Pediatric Rheumatic Diseases Currently recruiting
- Bracing vs Casting in the Treatment of Idiopathic Early Onset Scoliosis Currently recruiting
- An assessment of clinical efficacy of hypothermic therapy following Pivotal Trial II (mTBI) in the adolescent athlete Currently recruiting