Tiffany Wedekind – also known as Tenacious Tiffany – is a 4’5” force of energy and enthusiasm. She and multiple relatives have the rare, fatal genetic disorder called “progeria” – which causes rapid aging. But she’s not letting that stand in the way of loving life. Tiffany enjoyed an active childhood, participating in dance, sports, […]
Metabolic lab makes access easier for people with genetic disorders
When Mindy Miller gave birth to her second son in 2020, she wasn’t expecting anything out of the ordinary. So, when she got the news that baby Oliver tested positive for a metabolic disorder called Phenylketonuria (PKU) during his routine newborn screenings she was thrown for a loop. “I had never heard of PKU and […]
