Disney trips, celebrity meetings and other grand adventures usually top the list when 6-year-old boys with cancer are approached by wish-granting organizations. Liam Whitworth, of Doylestown, asked for a baby sister. And she is on the way. Liam has named his baby sister, Zoey, and their story is one that is both beautiful and heartbreaking. […]
Researchers get a global audience for work on narrative medicine
A team from Akron Children’s recently presented at the 21st Communication, Medicine, and Ethics (COMET) Conference at the University of Cork, in Cork, Ireland. The presentation was on “Integrating Narrative Medicine in a Pediatric Clinical Setting: Understanding the Illness Experience of Children While Improving Health Outcomes.” Akron Children’s has one of the few hospital-based narrative […]
Palliative care helps Marissa Anderegg live her best life
There is no shortage of love in the Penrod household. It flows between Lori and Marv Penrod and Marissa Anderegg, their 19-year-old daughter who has several life-threatening conditions. From there, it extends to include Akron Children’s Haslinger Family Pediatric Palliative Care Center, which has made caring for Marissa at home possible. “Palliative Care has always […]
Akron Children’s secures NIH grant to lead research for home-based pediatric palliative care
Akron Children’s has been awarded a three-year $1.3 million grant from the National Institutes of Health (NIH)/National Institute of Nursing Research (NINR) to better define the practices of high-quality pediatric palliative care, particularly in seeking out the voices of the children, teens and young adults at the center of that care. Dr. Daniel Grossoehme, a […]
