Going to an indoor water park was on Alexis Walsh’s birthday bucket list. Alexis, who turned 14 in October, 2023, thought it would be fun, especially riding rafts down the slides with her family. During Christmas break, Alexis fulfilled her wish and enjoyed a mini family vacation to a local water park. The outing was […]
Dr. Kathryn Mosher on SMA gene therapy: “These are days we hardly dared to dream of”
There’s a saying, “Timing is everything in life.” This could not be more true for Kali and Kaiden, Antonio and Estella-Rose, Marshall, and Harlow (plus her big brother Jordan) – babies born with Spinal Muscular Atrophy (SMA) who have received a gene therapy at Akron Children’s, since it was approved by the FDA […]
Akron Children’s patient is among first to receive life-changing gene therapy for Duchenne muscular dystrophy after FDA approval
When 5-year-old Vinny DeMando left Akron Children’s on Aug. 4, he left with a newly FDA-approved gene therapy making its way through his body. His parents left with hope and gratitude for a brighter, healthier future for him. Vincent (Vinny), of Massillon, was diagnosed in July 2021 with Duchenne muscular dystrophy (DMD), a rare and […]
NDSC is core to Joey’s care team
The Akron Children’s NeuroDevelopmental Science Center (NDSC) brings together 5 pediatric specialties under one roof to deliver the best outcomes and quality of life for children affected by neurological and developmental disorders. For Joey Ricci, now 18, the NDSC is where his health journey began. At 6 months old, Joey still wasn’t thriving, and tests […]
Owen saddles up – and up, up, up goes his confidence
It could have been a late birthday gift or an early Christmas gift but, anyway you look at it, spending time riding a horse named Rambo was an experience Owen Culp won’t soon forget. Owen, who turned 17 on Dec. 6, had mentioned to Dr. Katrina Lindsay that he enjoyed caring for a neighbor’s horses […]
