When 5-year-old Vinny DeMando left Akron Children’s on Aug. 4, he left with a newly FDA-approved gene therapy making its way through his body. His parents left with hope and gratitude for a brighter, healthier future for him. Vincent (Vinny), of Massillon, was diagnosed in July 2021 with Duchenne muscular dystrophy (DMD), a rare and […]
NDSC is core to Joey’s care team
The Akron Children’s NeuroDevelopmental Science Center (NDSC) brings together 5 pediatric specialties under one roof to deliver the best outcomes and quality of life for children affected by neurological and developmental disorders. For Joey Ricci, now 18, the NDSC is where his health journey began. At 6 months old, Joey still wasn’t thriving, and tests […]
Owen saddles up – and up, up, up goes his confidence
It could have been a late birthday gift or an early Christmas gift but, anyway you look at it, spending time riding a horse named Rambo was an experience Owen Culp won’t soon forget. Owen, who turned 17 on Dec. 6, had mentioned to Dr. Katrina Lindsay that he enjoyed caring for a neighbor’s horses […]
Baby’s future looks bright thanks to early diagnosis, treatment for spinal muscular atrophy
Day by day, a baby girl from Akron is hitting new milestones, charming her adoring parents, and learning more about the world around her. But, if you passed her in her stroller, you would have no hint of the devastating diagnosis her parents received within her first week of life. Ultimately, a trifecta of modern […]
