Hilary Tonni’s connection to Akron Children’s runs deep. Not only has she worked here for the last 16 years (currently as a clinical research nurse), it’s also the place she seeks care for her 8-year-old son, Gabe, who has Down syndrome. Hilary’s journey with Gabe began with a 20-week ultrasound that hinted at the possibility […]
Dr. Kathryn Mosher on SMA gene therapy: “These are days we hardly dared to dream of”
There’s a saying, “Timing is everything in life.” This could not be more true for Kali and Kaiden, Antonio and Estella-Rose, Marshall, and Harlow (plus her big brother Jordan) – babies born with Spinal Muscular Atrophy (SMA) who have received a gene therapy at Akron Children’s, since it was approved by the FDA […]
Karson celebrates 100th infusion with disco party
As 5-year-old Karson Ross arrived for his infusion, he had no idea the staff behind the doors in his sedation room was about to spring a party on him. There were disco lights, cool light-up gloves and eyeglasses for Karson, and even a bit of dancing – all to mark the 100th infusion Karson would […]
Medina girl shines on Hollywood runway, modeling adaptive footwear
Meghan Cawley, 10, of Medina, was beaming as brightly as any of the lights on her as she walked the runway in Hollywood. Meghan, who has congenital hydrocephalus, epilepsy and severe scoliosis, was invited to model shoes that make it easier for kids like her who wear ankle braces, technically called ankle foot orthotics (AFOs). […]
Hearing-impaired high school drummer ‘feels the beat,’ finds band a ‘creative & therapeutic outlet’
If you saw Elijah “Eli” Golden out on the football field marching with the McKinley High School Marching Band, you wouldn’t know he is hearing impaired. The sophomore drummer is keeping the beat by feeling the sound vibrations all around him. “If he can’t hear the music going on, that’s fine because he can feel […]
