As 5-year-old Karson Ross arrived for his infusion, he had no idea the staff behind the doors in his sedation room was about to spring a party on him. There were disco lights, cool light-up gloves and eyeglasses for Karson, and even a bit of dancing – all to mark the 100th infusion Karson would […]
Medina girl shines on Hollywood runway, modeling adaptive footwear
Meghan Cawley, 10, of Medina, was beaming as brightly as any of the lights on her as she walked the runway in Hollywood. Meghan, who has congenital hydrocephalus, epilepsy and severe scoliosis, was invited to model shoes that make it easier for kids like her who wear ankle braces, technically called ankle foot orthotics (AFOs). […]
Hearing-impaired high school drummer ‘feels the beat,’ finds band a ‘creative & therapeutic outlet’
If you saw Elijah “Eli” Golden out on the football field marching with the McKinley High School Marching Band, you wouldn’t know he is hearing impaired. The sophomore drummer is keeping the beat by feeling the sound vibrations all around him. “If he can’t hear the music going on, that’s fine because he can feel […]
Living with a brain tumor is a new way forward for Dylan
Nine-year-old Dylan Modelski only knows one speed – fast – and he applies it to all 5 sports he plays. But, this spring, the Poland McKinley third grader was diagnosed with a brain tumor that he couldn’t out run on his own. “The school nurse called to tell me she was concerned about Dylan’s reaction […]
Baby’s future looks bright thanks to early diagnosis, treatment for spinal muscular atrophy
Day by day, a baby girl from Akron is hitting new milestones, charming her adoring parents, and learning more about the world around her. But, if you passed her in her stroller, you would have no hint of the devastating diagnosis her parents received within her first week of life. Ultimately, a trifecta of modern […]