If you see Sarah Betz and Kyle Nottingham while out running, give them a shout-out or a high-five. Kyle loves the attention and Sarah has earned the kudos. Sarah, a close friend to Kyle’s mother, Jenny, and a caregiver to Kyle, has logged more than 520 miles running so far this year, including 150 miles […]
Baby’s future looks bright thanks to early diagnosis, treatment for spinal muscular atrophy
Day by day, a baby girl from Akron is hitting new milestones, charming her adoring parents, and learning more about the world around her. But, if you passed her in her stroller, you would have no hint of the devastating diagnosis her parents received within her first week of life. Ultimately, a trifecta of modern […]
Akron Children’s earns certification for Duchenne muscular dystrophy clinic
One of the few things more difficult than treating Duchenne muscular dystrophy is having to deliver the news of the diagnosis to a patient family. Duchenne MD is the most severe form of muscular dystrophy and is typically diagnosed in childhood. The disease affects a protein that is important for keeping muscle fibers intact. In […]
