From a young age, Morgan Collier knew she wanted to take care of people. That passion led her to earning a nursing degree. After spending time caring for patients in a trauma setting, Morgan moved on to precision medicine. According to the National Library of Medicine, precision medicine is “an emerging approach for disease treatment […]
Massillon parents face their children’s rare disease with love, strength and perseverance
Richie and Kelsey Williams of Massillon, Ohio looked forward to their date night. It was their first outing since becoming parents. They planned to go to a friend’s wedding and Richie’s parents agreed to watch their five-month-old daughter, Quinn. “My mom called while we were out and said Quinn was sick and throwing up every […]
After shocking Prader-Willi diagnosis, baby Jayda is progressing by leaps and bounds
Warren native Michele Hampton’s pregnancy was typical: She had common pregnancy discomforts, a growing belly (and swollen ankles) and a baby that was developing normally. In fact, it was very similar to her first healthy pregnancy, so when Michele was induced at 40 weeks, her and her husband, Andrew, were excited and eager to meet […]
Not to be slowed by rare disease, Minerva boy has the winningest attitude for sports, life
Clayton Richeson. Son. Grandson. Oldest brother of three. Multi-sport athlete. Fifth grader who loves science, Legos, and fun on a trampoline. The list could go on, but one thing that is just part of his story – not his headline – is that Clayton is an 11-year-old with a rare genetic disorder. The disorder is […]
Metabolic lab makes access easier for people with genetic disorders
When Mindy Miller gave birth to her second son in 2020, she wasn’t expecting anything out of the ordinary. So, when she got the news that baby Oliver tested positive for a metabolic disorder called Phenylketonuria (PKU) during his routine newborn screenings she was thrown for a loop. “I had never heard of PKU and […]
Evan Wooldredge cooks up his next stage of life after beating rare genetic disease
Evan Wooldredge, age 18, is the kind of person who is always up for a challenge. Whether he’s creating a new menu item at work, learning to golf or managing a rare disease that affected his kidneys, Evan doesn’t let restrictions hold him back. One of Evan’s biggest challenges happened when he turned 10. After […]
