With her larger-than-life personality, Annie, 6, has always had an unbreakable spirit despite her medical conditions. At her mom’s 5-month ultra sound, Annie’s arms and legs were measuring smaller than a typical baby. Specialists thought she may have achondroplasia (dwarfism), but genetic testing and additional scans revealed more concerns. Doctors detected healing breaks in her […]
Family of 5 has brittle bone disease, unbreakable spirits
In early 2017, Kristen MacKellar had just finished nursing her 3-month-old baby boy to sleep. A snuggly baby, she typically nursed Samuel in her bed and later transferred him to his crib for safe sleep. Though on this day, he was especially tired and she didn’t want to disturb him. But when she stepped away […]
Our top “In the Moment” posts from February 2020
There were some touching stories of children overcoming their health challenges sprinkled amongst our top February “In the Moment” posts. We invite you to take a glance at those you may have missed, or a second peek at those you’ve already enjoyed. 1. We provided this chart to help parents figure out if it is […]
