From the outside, kids affected by bleeding disorders appear well but, on the inside, these conditions can damage joints or organs and require ongoing medical care. For parents, the other side effect of these conditions is the stress and anxiety they can bring as children learn to navigate their treatment plan independently. Colton Clites, now […]
Siblings with blood disorder can now see their providers virtually
The coronavirus pandemic has brought changes to health care, including one in particular that has made life a little bit easier and safer for the Workinger family of Wadsworth. Three Workinger children have an inherited blood disorder. For the first time this year, the kids were able to use telehealth services to see their providers […]
New hemophilia drug gives Wiley new lease on life
When 9-year-old Wiley Moran was diagnosed at birth with hemophilia, a disease that prevents blood from clotting properly, it wasn’t a surprise to his mom, Katharine, who found out she was a carrier when her older son, Logan, was diagnosed with it at age 5. According to Dr. John Fargo, a pediatric hematologist-oncologist in the […]
“Dr. Talai” delights our son Colton again and again
When our son Colton was diagnosed with a rare bleeding disorder at birth in 2002, our family entered a world we were unsure of. No one in either of our families dealt with a chronic illness. Our first year was rough. We had no idea how to protect our son from internal bleeding. We depended […]
