Tony Ferrante, age 24, was born with complex congenital heart disease (CHD). His condition is called pulmonary atresia with intact ventricular septum and it’s a condition he has and will live with for the rest of his life. According to one of Tony’s adult congenital heart disease (ACHD) cardiologists, Dr. Ashish Saini, CHD is the […]
Search Results for: Lace Up
Akron Children’s nurse finds support and advocacy for son with Down syndrome
Hilary Tonni’s connection to Akron Children’s runs deep. Not only has she worked here for the last 16 years (currently as a clinical research nurse), it’s also the place she seeks care for her 8-year-old son, Gabe, who has Down syndrome. Hilary’s journey with Gabe began with a 20-week ultrasound that hinted at the possibility […]
New Family Resource Center transforms how we connect families to support services
When Akron Children’s Family Resource Center opened decades ago, it was a library where families could get information about their child’s illness or condition from trusted medical sources. When our new Family Resource Center opens in April, it will be a “one-stop shop” where families can get all the support services they need in one […]
Mother/daughter cherish the opportunity to work together in the PICU, hope their research will leave it a better place
When Cathleen Tichy-Dreher, known to all as “Tichy,” a nurse practitioner with more than 4 decades of experience in pediatric critical care, joined Akron Children’s PICU in 2019, she noticed that the nurse practitioners and the medical residents in the unit were not working as collegially as she had experienced at her previous hospitals. Advance […]
Narrative medicine, patient journals support patients on their health care journey
As narrative medicine coordinator, Nicole Robinson witnesses on a daily basis the healing power of listening to the stories of our patients, their families and our hospital staff. “Narrative medicine is the use of literary arts to help patients, families and staff tell and listen to stories,” she said. “For children and families, it may […]
Celebrating 15 years of donor support in the Mahoning Valley: Beeghly campus growth made possible by our community
On Dec. 8, we’re celebrating the 15th anniversary of Akron Children’s Beeghly campus. We’ve accomplished a great deal since first opening those doors in 2008. And this growth was fueled by donor support. “Our donors and our community are the reason we’re celebrating this milestone,” said Paul Olivier, vice president of Akron Children’s Mahoning Valley. […]