Some people spend years trying to find their mission in life. For sweet Piper Grace Hoefler, it took just 27 days. Piper passed away from the effects of Spinal Muscular Atrophy (SMA) Type 0, but her legacy lives on in books about inclusion donated by her family’s charitable organization, Piper’s Key. “I didn’t want to […]
Baby’s future looks bright thanks to early diagnosis, treatment for spinal muscular atrophy
Day by day, a baby girl from Akron is hitting new milestones, charming her adoring parents, and learning more about the world around her. But, if you passed her in her stroller, you would have no hint of the devastating diagnosis her parents received within her first week of life. Ultimately, a trifecta of modern […]
