Our visit with the Myelo Clinic at Akron Children’s last week felt like we were prescribed a small dose of reality. Our hearts long for the hope that Jordan’s head, bladder, bowels, and legs will do more than the diagnosis tells us. I came prepared to ask the question about where each specialist feels Jordan’s […]
Twice the love on Valentine’s Day
It was so exciting to enjoy Valentine’s Day with my two valentines this year. Randy is an amazing husband and daddy. I love to watch him interact with Jordan. The days to come are going to be a joy to watch as he shares his heart with his son. Jordan, my sweet baby valentine, makes my […]
Fluid on brain cause for concern, close monitoring
We had a busy morning in the radiology department at Akron Children’s. The anxiety of watching the ultrasound is a little overwhelming at times. I would like to figure out what’s what. By that time Jordan won’t have ultrasounds any more. Once the fontanel, or soft spot, closes, Jordan will need MRIs. Our meeting with […]
Counting blessings…and appointments
It’s been a crazy week full of emotions. My mom, Jordan and I ventured to the Cleveland Clinic for her 6 month check up with her urology doctor. She had a good report saying that there were no signs of cancer in her renal system. We are so grateful for the results because she has […]
Add Dr. Kerwyn Jones to the list of amazing doctors at Akron Children’s
Dr. Kerwyn Jones is another doctor who is so calm and gentle with his presentation. He explained the x-rays and ultrasound results we had during our stay in the NICU. Jordan’s hips are strong in the hip socket, which will allow him to move them without coming out of place. I thought they were, but […]
Busy day at the myelo clinic
What a long, long, long day we had last Thursday. We left at 7:30 a.m. and arrived back in Seville at 2:30 p.m. The day started off in radiology. (I’m tempted to become an ultrasound technician just so I can follow what’s happening on the screen.) After the ultrasound tech completed what she thought needed […]