Jordan’s 18 month Myelo Clinic day at Akron Children’s arrived with what seems like the same anxiety and excitement as we’ve had in the past.
Febrile seizures: A new challenge for the new year
I think if we needed to close out the year of 2012 with a bang and start with a clean slate we would score a 10.
The Pollock Olympics
It’s a reality that Jordan isn’t going to be like other kids with a nervous system that allows their legs to move easier than his legs. He will be putting those super boots on, which will allow him to dream of whatever he wants to go after despite the need for a little assistance. When I really think about it, we all depend on something to get us to where we want to go whether it’s braces, wheelchair, bus, or car.
Jordan makes it through the Wipe Out
ordan has become more confident in his new skills, pulling himself up on his knees to check out what’s on the coffee table or attempting to position himself on our laps. He also enjoys finding our dog Sasha’s bone to give to her.
Still super – Jordan on the move with leg braces
Jordan has been doing well with his super boots. I am amazed at how these boots have given him freedom. As Randy and I were getting ready to go to work last week, Jordan was playing in his little area and tipped over.
Song speaks to my heart
As I was driving my car this week, thinking of what kind of news we may hear from the urology department at Akron Children’s, my anxiety fluctuated. I attempted to prepare myself for either answer. Do you want to hear the news you need to cath so you’re not constantly looking for signs and symptoms? Or do you want to hear keep monitoring?













