Tiffany Wedekind – also known as Tenacious Tiffany – is a 4’5” force of energy and enthusiasm. She and multiple relatives have the rare, fatal genetic disorder called “progeria” – which causes rapid aging. But she’s not letting that stand in the way of loving life. Tiffany enjoyed an active childhood, participating in dance, sports, […]
Massillon parents face their children’s rare disease with love, strength and perseverance
Richie and Kelsey Williams of Massillon, Ohio looked forward to their date night. It was their first outing since becoming parents. They planned to go to a friend’s wedding and Richie’s parents agreed to watch their five-month-old daughter, Quinn. “My mom called while we were out and said Quinn was sick and throwing up every […]
Not to be slowed by rare disease, Minerva boy has the winningest attitude for sports, life
Clayton Richeson. Son. Grandson. Oldest brother of three. Multi-sport athlete. Fifth grader who loves science, Legos, and fun on a trampoline. The list could go on, but one thing that is just part of his story – not his headline – is that Clayton is an 11-year-old with a rare genetic disorder. The disorder is […]
