When 5-year-old Vinny DeMando left Akron Children’s on Aug. 4, he left with a newly FDA-approved gene therapy making its way through his body. His parents left with hope and gratitude for a brighter, healthier future for him. Vincent (Vinny), of Massillon, was diagnosed in July 2021 with Duchenne muscular dystrophy (DMD), a rare and […]
NDSC is core to Joey’s care team
The Akron Children’s NeuroDevelopmental Science Center (NDSC) brings together 5 pediatric specialties under one roof to deliver the best outcomes and quality of life for children affected by neurological and developmental disorders. For Joey Ricci, now 18, the NDSC is where his health journey began. At 6 months old, Joey still wasn’t thriving, and tests […]
Game changer: How research is helping mitochondrial patients like Abby MacCurtain
From day 1, Abigail “Abby” MacCurtain had 2 distinct features – a bright smile and noisy breathing. While her trademark smile brought joy, her noisy breathing took her on a medical journey that, ultimately, brought her from Boston to the Rebecca D. Considine Research Institute at Akron Children’s Hospital. At the time, new parents Greg […]