It’s been a month since our last post. Life goes by so quickly. Our little Peanut has been growing like a weed. We fall more and more in love with him every day. His smile will melt your heart. Our conversations together will be a moment we cherish as he grows. I love listening to […]
Busy day at the myelo clinic
What a long, long, long day we had last Thursday. We left at 7:30 a.m. and arrived back in Seville at 2:30 p.m. The day started off in radiology. (I’m tempted to become an ultrasound technician just so I can follow what’s happening on the screen.) After the ultrasound tech completed what she thought needed […]
Busy month for Jordan – vacation bible school, play date and more
We’ve had so much fun watching our little man grow over the past few weeks. He had his first laugh at his dad on Sunday. Randy was dancing and singing to him then suddenly Jordan gave him a wide grin, which was caught on camera. I love to watch his little facial expressions. We’ve had […]
Thank you to the fetal treatment center, neurosurgery, neonatology and more…
When we first met with Dr. Stewart in February, he said that while we would come back to see him, he would be referring us to a genetic counselor at Akron Children’s as well. I was a little confused as to why we would need to see a genetic counselor. We already knew our Peanut […]
Next stop – urology
We had an appointment with the pediatric urology department to check to see where Jordan falls in the bladder department. He has not had to be cathed thus far and has been able to urinate on his own. Even with the encouraging words from our doctors so far, it was a little unnerving to go […]
Jordan’s final days in the NICU
Jordan has one less tube today. The NG (feeding) tube came out because our neonatologist said we could feed the little guy on demand to try to increase his intake. We are really pushing to get the ok to get home. We’ve had visits from the occupational, physical and speech therapists. Jordan’s head and neck […]
