Remarkable. Resilient. Hard-working. These are just a few of the words used by Josh Yacklin’s providers to describe him. Now 20, Josh has been challenged pretty much from his earliest days with neurofibromatosis, a condition which causes the growth of tumors along nerves in the skin, brain and other parts of the body. They can […]
Here We Go Again and Again
For some reason the ease that we might feel from having Jordan’s shunt replaced was short lived as this was the first he had expressed discomfort after his surgery. The neuro team at Akron Children’s told us there is a high rate of malfunction in the first year. This doesn’t really put your mind at […]
Counting down to cast-off day
I’m not sure what I had expected after Jordan’s hip surgery, but it’s been a crazy ride. We tried to prepare the house for Jordan’s homecoming. I researched on different blogs and looked for suggestions on Pinterest. I watched videos about how to care for him to maybe get some insight for what to expect and where our journey would take us next.
