Six-year-old Evelyn Horsfall has lived in northeast Ohio all her life but has never been able to play in the snow. This winter was different. For the first time, Evelyn played with her siblings in the snow in a pair of winter boots that stayed on securely. Evelyn, who has spastic cerebral palsy, wears leg […]
Families donate to Akron Children’s NICU and Palliative Care to honor and remember their babies
When Nate Evins learned his co-worker’s baby boy had passed away 11 days after birth, he felt a lot of sympathy. He and his wife had also experienced the loss of their baby, who lived 28 days after she was born. He asked his wife if she was willing to talk to his colleague, Brittany […]
Researchers get a global audience for work on narrative medicine
A team from Akron Children’s recently presented at the 21st Communication, Medicine, and Ethics (COMET) Conference at the University of Cork, in Cork, Ireland. The presentation was on “Integrating Narrative Medicine in a Pediatric Clinical Setting: Understanding the Illness Experience of Children While Improving Health Outcomes.” Akron Children’s has one of the few hospital-based narrative […]
Palliative care helps Marissa Anderegg live her best life
There is no shortage of love in the Penrod household. It flows between Lori and Marv Penrod and Marissa Anderegg, their 19-year-old daughter who has several life-threatening conditions. From there, it extends to include Akron Children’s Haslinger Family Pediatric Palliative Care Center, which has made caring for Marissa at home possible. “Palliative Care has always […]
Akron Children’s secures NIH grant to lead research for home-based pediatric palliative care
Akron Children’s has been awarded a three-year $1.3 million grant from the National Institutes of Health (NIH)/National Institute of Nursing Research (NINR) to better define the practices of high-quality pediatric palliative care, particularly in seeking out the voices of the children, teens and young adults at the center of that care. Dr. Daniel Grossoehme, a […]
Nicole Robinson honored by the American Academy of Hospice and Palliative Medicine
Nicole Robinson, narrative medicine coordinator, was recently honored with the Humanities Award from the American Academy of Hospice and Palliative Medicine for her work advancing the relationship between humanities and palliative care and using the discipline to improve end-of-life care through community and professional education. Nicole works under the auspices of the Haslinger Pediatric Palliative […]
