Brandon Johnson, 26, knows it’s not every day that a person with medical complexities gets to move into their own apartment but, thanks to his care team at Akron Children’s Hospital, Brandon is defying the odds and giving hope to those who have the same goal. “Brandon’s independent living still requires around-the-clock care so we […]
Inclusion is key to Piper’s legacy
Some people spend years trying to find their mission in life. For sweet Piper Grace Hoefler, it took just 27 days. Piper passed away from the effects of Spinal Muscular Atrophy (SMA) Type 0, but her legacy lives on in books about inclusion donated by her family’s charitable organization, Piper’s Key. “I didn’t want to […]
Narrative medicine lets Cerriana share her story
After a year of managing a brain cancer diagnosis, dozens of surgeries and relentless medical treatments, Cerriana (14) of Alliance was hopeful the worst was behind her. When she learned her cancer was back, she didn’t know if she had the strength to do it all again, but she knew she had something to say […]
Nicole Robinson honored by the American Academy of Hospice and Palliative Medicine
Nicole Robinson, narrative medicine coordinator, was recently honored with the Humanities Award from the American Academy of Hospice and Palliative Medicine for her work advancing the relationship between humanities and palliative care and using the discipline to improve end-of-life care through community and professional education. Nicole works under the auspices of the Haslinger Pediatric Palliative […]
Hirschbecks deliver holiday magic to Palliative Care families
Any positive break from the routine is welcomed for Traci Fraelich. The single mother from Newton Falls has been the primary caregiver for daughter Ella Marquette, 10, since she was born with a structural abnormality in her brain. “When you’re at home and isolated and doing complex medical care for your child 24/7, you feel […]
Reading, writing, reflecting: Narrative medicine gets boost at Akron Children’s
Medical professionals routinely take their patients’ medical histories when providing care. Now a grant-funded project at Akron Children’s Hospital is taking that idea a step further to encourage use of literature and personal stories to promote resiliency for patients and providers. “Taking Our Histories: Providing Hope Through the Humanities” is a yearlong project that includes narrative medicine workshops for health care professionals at Akron Children’s, as […]
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