Jordan’s 18 month Myelo Clinic day at Akron Children’s arrived with what seems like the same anxiety and excitement as we’ve had in the past.
Springing ahead after good week of appointments
We had another positive week of appointments last week. Jordan’s 9 month appointment showed his height and weight to be in the 50th percentiles. He was injected with one shot this time, and as usual, we are pleasantly sad by his reaction to getting a shot. We are happy that he feels the shot but […]
AFOs are AOK
Jordan’s appointments went well. We met with his dermatologist to recheck the birthmark on his tummy. He said that it had grown very slightly, but that comes along with the growth of his body. Again, he was not concerned at this point and will recheck it yearly, unless our lil’ Peanut has surgery, at which time […]
Reality hits us at Myelo Clinic visit
Our visit with the Myelo Clinic at Akron Children’s last week felt like we were prescribed a small dose of reality. Our hearts long for the hope that Jordan’s head, bladder, bowels, and legs will do more than the diagnosis tells us. I came prepared to ask the question about where each specialist feels Jordan’s […]
Twice the love on Valentine’s Day
It was so exciting to enjoy Valentine’s Day with my two valentines this year. Randy is an amazing husband and daddy. I love to watch him interact with Jordan. The days to come are going to be a joy to watch as he shares his heart with his son. Jordan, my sweet baby valentine, makes my […]
Counting blessings…and appointments
It’s been a crazy week full of emotions. My mom, Jordan and I ventured to the Cleveland Clinic for her 6 month check up with her urology doctor. She had a good report saying that there were no signs of cancer in her renal system. We are so grateful for the results because she has […]
