My 2-year-old daughter Addilinn was diagnosed April 13 with neuroblastoma cancer. She has to go through surgery, chemotherapy, a bone marrow transplant, radiation and therapy (at the Showers Family Center for Childhood Cancer and Blood Disorders).
On July 30, we got the surgery behind us. Dr. Aaron Garrison removed as much as the tumor as he could. She completed 6 rounds of chemo and is doing well.
Addilinn has a lot of scans to go through on Sept. 6 and if she passes, she will start her bone marrow transplants the last week of September. She’ll then be in the hospital for the transplant for 2 1/2 months so that mean she will be in there for Halloween and Thanksgiving. If everything goes right, she’ll get out 2 days before her birthday.
Addilinn has been leaning on her new little sister, Bryleigh, a lot, who was born on Aug. 9, because on Aug. 25, Addilinn lost her Papa Ed. He was also battling cancer. They were fighting together so now Addilinn is going to finish their battle for them. ❤️❤️🌹
Addilinn’s dad and I are beyond thankful for the hematology oncology nurses and doctors. Her favorites are nurse Kerry and Dr. (Stephanie) Savelli.
She has come such a long way since she was first diagnosed. It took Addilinn’s dad and me 4 months to get her pediatrician to figure out what was wrong with Addie. I switched to a new pediatrician who is Dr. Andrea Knighton at the Akron Children’s Hospital Pediatrics in Ashland. She sent us to the hospital right away.
Addilinn has been doing awesome with all her treatments. Nothing has knocked her down yet. She hasn’t gotten sick from any of the chemo. She was trying to get up the day after her surgery. She has truly inspired us all. ❤
She is our miracle baby – that is for sure.