Just before Evie Densevich turned one, she underwent an 8-hour surgery at Akron Children’s Hospital to rebuild her skull.
“Evie’s rear skull sutures fused too early and her head shape was growing very long and narrow, which wasn’t allowing her brain the right amount of space it needed to grow properly,” said Evie’s mother Catie.
Evie’s diagnosis of sagittal craniosynostosis meant that Dr. Niyant Patel and Dr. Tsulee Chen would need to remove every piece of Evie’s skull and rebuild one with suture knots to allow her brain to grow at an appropriate pace.
The surgery was a success and today, Evie is a happy 2-year-old who loves chasing her older brother and her dogs around the house and swimming.
Despite the surgery’s success, Evie is a “lifer” as Catie puts it – she will need to be seen by the craniofacial team and Dr. Patel at least once a year until she is 18.
After their experience with Akron Children’s, Catie decided to get involved at the hospital as a parent mentor for the Parent Advisory Council and donates her time and money when she can. She also recently joined the Emerging Leaders, an advisory board dedicated to raising funds for Akron Children’s, to continue fundraising for and giving back to Akron Children’s.
Last year, the Densevich family decided to give back as Change Bandits and launched a #MightyEvie campaign to raise money. Their first-year fundraising effort brought in about $3,000 and the Densevichs are looking forward to once again participating in the 98.1 KDD “Have a Heart, Do Your Part” Radiothon benefiting Akron Children’s Hospital.
“We’re so thankful to be part of this family,” Catie said.
Be sure to tune in to 98.1 KDD Feb. 9-11 to hear more inspiring patient stories during the 2017 “Have a Heart, Do Your Part” Radiothon broadcasting live from Akron Children’s. Click here to make a donation or text KDD to 41444 and donate right from your smartphone.