Jordan’s 18 month Myelo Clinic day at Akron Children’s Hospital arrived with what seems like the same anxiety and excitement as we’ve had in the past.
Each time we’re so excited to share his accomplishments and progress with our Myelo Clinic family. Our family grew by 2 this visit.
The first new addition to our family is Shannon Leslie, the clinical coordinator. She holds the reins to the day, guiding our specialists to and from and allowing the flow to make for an organized day.
This was our first clinic with her guidance and she made for a smooth day getting each specialist in with ease. Cindy, a previous coordinator, was also moving the day on as well.
Our second member we added was Dr. Micah Baird, a physiatrist. Typically he’s introduced at 2 years.
However after some discussion with Shannon on the phone, we thought it would be great to meet at 18 months. He watches and assists with Jordan’s movement with his muscles. We were curious to get another set of medical eyes to watch our son.
Dr. Baird is another amazing doctor to watch as he interacts with children. As his wheels were turning he kept us entertained with his techniques to gather his assessment.
Jordan complied with his new SMO braces as he walked across his parallel bars we brought with us to the appointment. We wanted to show what we were working on at home with the equipment we use.
One area that was harder to assess was Jordan’s hip extension. We aren’t sure if his nerves are firing in these particular muscles, which will aid him during ambulation (walking). As our time went on so did Jordan’s willingness to act as our puppet.
Dr. Kerwyn Jones stopped in to check on his progress as well as Dr. McMahon, his urologist.
We were relieved to hear Jordan’s ultrasound revealed both kidneys are growing and there wasn’t extra fluid in the bladder. He was pleased to hear that Jordan is continuing to wet his diapers and poop in his little potty.
These were areas that we had discussed when we made our appointments in August after our little man’s urinary tract infection (UTI).
I’m convinced we will always have small bouts of doubt that accompany these appointments because there aren’t any absolutes.
Dr. Hull let us know we could continue what we were doing. His check-up is very similar to the 18-month check-up we had earlier in the week so we were prepared for the questions he had for us.
It was reassuring to see him because we wanted to make sure Jordan’s ears were clearing up after fighting another ear infection.
It doesn’t get any better than a great report and being home with our little boy.
Read more about Megs’ and Randy’s journey of raising a child with spina bifida through her blog, Labor of Love.
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