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Grand Rounds: Neurofibromatosis: A Multisystem Disorder Requiring a Comprehensive Clinical Approach

10-02-2020

By Erin Wright, MD; Jacqueline Branch, MD; Matthew Ginsberg, MD; Jason Laufman, MD; and Kara Vitalone , Akron Children's Hospital, Akron, OH

More about Erin Wright, MD
More about Jacqueline Branch, MD, FAAP
More about Matthew Ginsberg, MD
More about Jason Laufman, MD, FACMGG
More about Kara Vitalone, MS, CGC


Objectives (Educational Content) :

1. Distinguish which patients meet clinical criteria for neurofibromatosis. 2. Evaluate which patients may benefit most from comprehensive care in a multidisciplinary clinic. 3. Summarize the different providers in NF clinic and how we work together to provide comprehensive care.

Target Audience:

General pediatricians, family physicians, nurse practitioners, physician assistants, social workers, psychologists and nurses

Identified Gap:

Collaboration across multiple disciplines will provide more comprehensive care to these patients and improve outcomes.

Estimated Time to Complete the Educational Activity:

1 hour

Expiration Date for CME Credit:

10-01-2021

Method of Physician Participation in the Learning Process:

The learner will view the presentation, successfully complete a post-test and complete an activity evaluation.

Evaluation Methods:

All learners must successfully complete a post-test, as well as an activity evaluation, to claim CME credit.

Disclosure:

Drs. Wright, Branch, Ginsberg and Laufman and Ms. Vitalone have all indicated that they have no relevant financial interest in any pharmaceutical or medical device company and that this activity was developed independent of commercial interest.

Accreditation Statement:

Children’s Hospital Medical Center of Akron is accredited by the Ohio State Medical Association to provide continuing medical education for physicians.

CHMCA designates this enduring material activity for a maximum of 125 AMA PRA Category 1 Credit TM.  Physicians should only claim the credit commensurate with the extent of their participation in the activity.
 

Bibliography:

Health Supervision for Children With Neurofibromatosis Type 1. David T. Miller, Debra Freedenberg, Elizabeth Schorry, Nicole J. Ullrich, David Viskochil, Bruce R. Korf, COUNCIL ON GENETICS and AMERICAN COLLEGE OF MEDICAL GENETICS AND GENOMICS. Pediatrics May 2019, 143 (5) e20190660; DOI: https://doi.org/10.1542/peds.2019-0660

Guidelines for the diagnosis and management of individuals with Neurofibromatosis 1 (NF1). March 2007, Journal of Medical Genetics 44(2):81-8, DOI: 10.1136/jmg.2006.045906

Neurofibromatosis Type 1 and tumorigenesis: molecular mechanisms and therapeutic implications. Oren N. Gottfried , David H. Viskochil , William T. Couldwell 2010   Neurosurgical Focus   |Volume: 28, Issue: 1 | DOI:10.3171/2009.11.FOCUS09221

Advances in the treatment of neurofibromatosis-associated tumours. Lin and Guttman.  Nature. 2013