Easing pain and suffering through palliative care

Pediatric palliative care focuses on infants (even prenatal), children, adolescents and young adults with complex or chronic conditions and their families, enhancing quality of life in partnership with cure-directed care.

Palliative care and curative care are not either/or. In fact, palliative care is most beneficial and effective for families when it is offered and delivered concurrently with disease-modifying therapy.

This approach aims to control pain and other symptoms, as well as to help with psychosocial, emotional, practical, spiritual, educational and developmental issues, which may contribute to suffering or interfere with healing.

Palliative care is truly the effort of a transdisciplinary team, including, but not limited to: physicians, nurses, social workers, case managers, bereavement specialists, chaplains, child life specialists, pharmacists, psychologists, volunteers, and physical and expressive therapists.

Palliative care provides an opportunity for enhanced communication with healthcare providers, aiding families in making informed choices about difficult medical decisions.

Palliative care focuses on providing seamless care coordination and delivering care to patients and families where they feel most comfortable, whether in a home, hospital or alternative setting.

Palliative care efforts are completely compatible with the pursuit of interventions directed at prolonging life, and treatment is customized to meet the needs of each individual patient.

Or, as we like to describe it here at the Haslinger center: Palliative Care = A Palette of Care. Patients and families are given a canvas, brushes and paints with which to paint a life of quality, free of suffering. 

The colors on the painter’s palette represent all the different disciplines of caregivers on the palliative care team. Each child and family can pick and choose the colors they need or want to create the most beautiful painting possible of life and hope.

7 things palliative care is:

  1. Collaboration and communication with providers and resources
  2. Seamless care coordination
  3. Help in making difficult decisions
  4. Customized care
  5. Support for the patient and the entire family
  6. Available 24 hours a day
  7. Hope and healing, comfort and quality

7 things palliative care is not:

  1. Giving up
  2. Stopping medical treatment aimed at curing the disease
  3. Withholding or withdrawing care
  4. Hospice
  5. Just for cancer patients
  6. One size fits all
  7. Taking over care from the primary team

What is palliative care?
Publication: Other

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