What we're missing

2012-01-11 12:45:01 by Sarah Plant, Patient Family, as posted on the inside.akronchildrens.org blog.

Sometimes it’s difficult when I think of all we’re missing out on. Rebekah will be 2 months old Jan. 12 and most of our family members have never seen her.  We haven’t passed her around to the visitors we do allow because of the germs they may be carrying.We haven’t tried out all of the shower presents and Christmas toys.

We know there are things at home that she’ll be too old for soon, and things we won’t ever need because she’s already outgrown them. It’s hard to think about the things normal parents do in the first two months without being sad sometimes.

Although I love Rebekah, even with (or especially because of) all of her quirks and occasional orneriness, there is a part of me that still, even two months later, is grieving the loss of a “perfect” take-home baby.

In the midst of that grief, however, I always come to the same conclusion. Most parents, even first time parents, do not have the same sense of awe and wonder that I feel each time Rebekah does something that we never thought we’d see her do. Breathing, opening her eyes, and eating are miracles for us each and every day.

So while it hasn’t been the easiest journey for us so far, it certainly has been one that has filled me with a deep appreciation for every minute I am able to spend with one sweet (and sometimes silly) baby girl.

Sure, we may be missing out on some common, ordinary things that other parents get to do, but I’m not taking a single heartbeat for granted.

Read the rest of Sarah and Rebekah's story through her blog, Following Your Heart.

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