Blogging Bekah

2012-05-30 08:01:01 by Sarah Plant, Patient Family, as posted on the blog.

Back in December 2011 when Laurie Schueler, Akron Children’s Hospital Media Relations Specialist, suggested that I join the ranks of the Mommy Bloggers, I confess I thought to myself, “who would even WANT to read about our lives.”

But, I started writing anyhow figuring at least it would be a nice and easy way to keep our families and friends updated on Rebekah’s progress (or occasional lack thereof).

After I finish each entry, I usually start looking ahead to what will happen next—sometimes it’s good (taking the last dose of heart medication) and sometimes it’s not-so-good (Bekah’s newfound allergies to milk, soy, soap, behaving properly, etc. that I’m sure you’ll be reading about soon.)

We’ve taken a technology break around here as Bekah has been helping me with the garden—she is a small but noisy scarecrow – and Chris with a kitchen remodel (she’s good at encouraging him to work faster so he can play with her sooner!).

With everything else going on in our lives, I hardly ever take the time to really sit down and look back at how far we’ve come. That’s why Tuesday, May 15, 2012, was such a surprising day. Because we don’t live in the viewing area (and because we love visiting our NICU friends), Chris and I took Bekah (who has no bedtime…we know…we’re terrible parents) and went to Akron Children’s to watch the 11 p.m. news.

I knew that Bob Jones of WEWS had been working on a story about Bekah and the blog. I knew from prior experience that he would do an awesome job. I knew that there would be footage of her both before and after open heart surgery, and I knew that there would be footage of the actual surgery too.

We felt fairly confident sitting in the Reinberger Family Center that we were prepared for the story (yes, even the shots of her heart beating and the flatline on the monitors when it was stopped, and even Dr. Smith saying that she wouldn’t have made it a year without surgery). It wasn’t until the 45-minute drive home that it really started to sink in. Wow. We’ve really come a long way since those first few days when we weren’t even sure that Bekah would live.

Now, at the end of May, I’ve begun to appreciate earlier blog posts, not because of what they did in updating anyone, or in enabling me to better express how I was feeling about things at the time, but because I can look back and remember just how scary everything was as we were going through it.

And now I can once again realize just what a miracle we’ve been given.

Read the rest of Sarah and Rebekah’s story through her blog, Following Your Heart.

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