2012-10-23 12:46:47 by Megs Pollock, Patient Family, as posted on the inside.akronchildrens.org blog.
I've found myself asking this question as we’ve been working with our little man. Often, I forget that there’s something missing.
He’s still crawling around at 16 months and his top two front teeth are the first to break through. Is this normal?
In order for Jordan to stand on his wobbly legs and feet he needs braces to hold him steady as he propels himself forward with his walker or using mini parallel bars. His bedtime routine consists of strapping on his moon boots to help keep his feet from pulling in the wrong direction.
Is this normal? It's our normal.
Sometimes my mind wonders about what normal looks like for most little ones.
Coming home from the hospital 2 days after you're born. Being fussy throughout the first few months of sleepless nights. Only visiting your pediatrician every 3 months. Chewing every piece of anything in sight.
As I step back and look around, is there normal? Is this where the pressures of life start? Will we compare ourselves to each other for the rest of our lives? Unfortunately I think it’s human nature. We are constantly comparing and measuring up to those around us.
Is it too much to challenge ourselves to say this is who I am, God has created me to be me? He is the only one who isn’t going to measure me against anyone besides who he has planned me to be. He loves me for being me. It’s something I have to step back and remind myself of these truths.
Our Peanut’s routines have consistently changed throughout our journey. One has been his bed and nap time routines. On the days I'm not scheduled to work, I enjoy our routine of listening to soothing music and cracking open a few books as we rock together in his room.
The first is usually full of fun, exciting adventures in the Hundred Acre Woods, driving around on a tractor, or saying good night to the construction trucks.
We finish with a book like "On the Night You Were Born" by Nancy Tillman that eases our minds as our little one drifts off to sleep while I gently turn the pages whispering each word as I pray they engrain in his sweet heart.
It closes with the following words:
"For never before in story or rhyme (not even once upon a time) has the world ever known you, my friend and it never will, not ever again.
Heaven blew every trumpet and played every horn on the wonderful, marvelous night you were born. Wonderful…Marvelous…you…
You are loved."
Hmmm Normal? Nah we’ll take Jordan. “For you are fearfully and wonderfully made…” Psalms 139
Read more about Megs’ and Randy’s journey of raising a child with spina bifida through her blog, Labor of Love.
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