Taking the long way to Akron

2013-05-15 14:55:25 by Sarah Plant, Patient Family, as posted on the inside.akronchildrens.org blog.

As soon as she was born, Rebekah spent a few hours under an oxygen hood at Trumbull Memorial. Nurses took blood and they reassured us that she’d probably be fine.

A few hours later, we met the transport team that took her to St. Elizabeth’s.

At St. E’s the nurses became our best friends. They explained what was happening as it happened, and told us very calmly that things would probably get worse before they would get better.

And boy did they ever get worse…TREMENDOUSLY WORSE. We spent hours with her while she deteriorated.  We waited through test after test as more and more machines were added to keep her alive. Finally in the late afternoon, a doctor said it had to be more than just a lung issue. They called a cardiologist, did an EKG, and discovered a VSD – a hole in her heart.

We started the day with one nurse, and ended with eight people around her bed—three nurses, two respiratory therapists, two neonatologists, and a cardiologist. For a while, everyone offered suggestions. Try this, how about that.

Then everyone stopped talking.

Even the other babies didn’t make noises. The room was silent except for the sounds of the machines and an occasional whisper from a doctor. Everyone looked from machines to baby, and back to machines.

When the doctor came toward us I was afraid that my worst fears would be confirmed. I expected him to tell us that we could hold her and say goodbye.

I was unbelievably relieved when he said they were calling Akron Children’s Hospital to start the transport process yet again.

Read the rest of Sarah and Rebekah's story through her blog, Following Your Heart.

Post or read comments about this story on inside.akronchildrens.org >>

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