2013-09-06 13:49:28 by Sarah Plant, Patient Family, as posted on the inside.akronchildrens.org blog.
Bekah had torticollis as an infant. Torticollis is a twisted neck in which the head is tipped to one side, while the chin is turned to the other.
When we left Akron Children's†NICU with Rebekah on Jan. 21, 2012, Christopher and I knew that open heart surgery was looming in the near future.
We also knew of, but definitely werenít nearly as worried about, a little bit of torticollis she had going on. We knew surgery would be within a month or two, and so conferred with Bekahís pediatrician and decided to wait until after surgery and then start physical therapy as soon as her little chest was healed enough to begin.
What we didnít know was that Bekah apparently LOVED her torticollis, and that now, over a year later, heart surgery seems like it was a much easier solution to a problem than over a year of pediatric physical therapy for a crooked neck.
When she first started going everyone pretty much agreed that it should only take a few months to make her neck strong enough to support her head better, and to stretch her muscles so that it didnít look like her left ear was connected to her shoulder.
After a few months, when Bekah didnít seem to be progressing as quickly as expected, we went to see Dr. Adamczyk to see if there was something wrong with Bekahís neck or spine orthopedically that would not let her head get straighter. He checked her and did not find anything of concern.
Our next visit was to Dr. Lawhon to see if there was an ophthalmological problem and she was tipping her head in order to see better. There was not.
We decided that Bekah was just very stubborn.
Actually, though, I really think that Bekah just loved going to therapy every week.† Most Thursdays she is waiting at the door with her arms full of toys and other things that she wants to share with Jeanette, her therapist (who is also her pediatricianís sisterÖsometimes I think Bekah just wants to be a member of their family).
I can tell you from our NICU experience that I always think Iím ready for something to end until itís actually time to go.
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