2012-11-16 15:52:24 by Megs Pollock, Patient Family, as posted on the inside.akronchildrens.org blog.
Bugs, bugs, bugs! I don’t know how we were able to make it through until now without a major sick bug besides his urinary tract infection (UTI) in August. It’s caught up to us now.
Jordan started off with a nasty cough which we think was probably croup and a little ear infection. Two weeks later we took him back and now we’re facing double ear infections and having to engage in a breathing treatment every 4-6 hours. Boy, oh boy!
Our little man has shown he doesn’t like to be cuddled when he’s sick. Instead he gets agitated and is very sensitive. These are emotions we haven’t seen a lot of in his almost 17 months in the outside world. We are crossing our fingers he starts feeling better.
I know it’s not the only time he’ll be sick, but hopefully in the future he can tell us when he’s not feeling good.
We are super excited to announce he has finally been approved and received his new SMOs and tennis shoes. These are braces that only go up as far as the top of his ankle. They help control ankle instabilities.
Photo by Amy Sir Louis Photography
Our super hero will now be able to wear them while he’s crawling, and they’ll assist him when he wants to pull or push to stand. The process has taken a little longer than we would have hoped, but we’re so happy for him to begin the new chapter in walking and standing.
Jordan has been doing so well crawling, tall kneeling, and getting a little assistance as he crawls up his slide. He loves to sit up on the top of his slide and look below as if he’s the king of the world.
This week he’s figured out how to control his body as he whisks down into our arms only to point up to do it again. Sometimes when we ask him if he wants to come down, he simply shakes his head and places each arm through the castle windows.
Eating has become more of a struggle of the wills. Of course when you ask him if he likes oatmeal, he will say “ya”, but when it comes time for a bite the pursed lips are sayin “no.”
The potty activity has been successful. I’m not sure if he could say, “Mommy, I need to go potty,” but he does have activity down there when he has sat on it about 5 minutes after he eats. I am truly amazed.
Another activity he loves is talking on the phone. He loves to call daddy and have a little chat during the day. I wish I knew what secrets he was telling him as he babbles on while pointing and waving his hands. He then gives a little villain laugh.
We truly have been blessed and are excited to visit with family and friends for Thanksgiving and Christmas. New traditions will be started as he’s a little more aware of what’s going on around him. I’m excited to try some new and old.
So in Jordan’s words, when asked shall we let the festivities begin? We say, “Ya! Ya!”
Read more about Megs’ and Randy’s journey of raising a child with spina bifida through her blog, Labor of Love.
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