How much do you know about diabetes? You might know that it's a condition that happens when a person's body can't control the amount of sugar (or glucose) in the blood. You also might know that people with diabetes have to pay attention to what they eat and get shots to help them stay healthy. But what's it like to live with diabetes every day? Just ask Chandler!
Chandler is 11 years old now, but he found out he had diabetes a few days after his fourth birthday. He's been living with diabetes for more than half his life already!
But diabetes doesn't stop him from doing all the things he likes. Even though he has to get shots and be aware of what he eats, he's still a very active guy. He loves to play baseball, skateboard, ride his bike, play video games, read, fish, swim, and collect Yu-Gi-Oh cards and baseball cards. He also likes watching all kinds of sports.
Some kids may have heard about diabetes but have never met someone with it. So we asked Chandler: "What do kids who don't have diabetes need to know about it?" He said kids need to know that "you can't catch it and it isn't contagious." He also said that kids should learn about diabetes "so you can help a diabetic person if they're in trouble."
So how did Chandler find out he had diabetes? It all started right before his 4-year checkup. His mom and dad noticed that he was drinking a whole lot and always having to go to the bathroom. He would wake up very thirsty and have to go to the bathroom in the middle of the night.
At the checkup, his mom told Chandler's doctor about what was going on. The doctor asked Chandler to do a urine (pee) test. When the results came back, the doctor told Chandler that he needed to go to the hospital because he probably had diabetes.
At the hospital, the doctors did some tests and then told Chandler he had type 1 diabetes. When someone has type 1 diabetes, it means his or her body has stopped making enough insulin. Insulin is needed to help glucose get from the blood into the cells. So, since glucose can't get into the cells on its own, the amount of glucose in the blood (also called blood sugar) can get very high and cause health problems.
To fix this, a person with type 1 diabetes like Chandler has to get insulin through shots or an insulin pump. Chandler and other people with type 1 diabetes also have to test their blood sugar levels several times a day.
Chandler says, "I get my blood checked and a needle (an insulin shot) at breakfast, lunch, and dinner and whenever I want a snack and before I go to bed."
Chandler has already received more than 5,000 insulin shots since he was first diagnosed. Even though he gets all those shots, he's still not really used to them. Sometimes his mom and dad have to convince him to get poked with a needle. It's definitely not fun, but Chandler knows he has to get his shots to stay healthy.
Besides testing his blood sugar level and getting shots, a regular day for Chandler is a lot like every other kid's. The only big difference is that he always has to pay close attention to his diabetes. That means he always has to be prepared. He says, "When I'm not at school, I have to make sure I always have my diabetes bag with me and tell someone if I feel low." (Sometimes blood sugar levels can drop down too low in people with diabetes. If someone with diabetes starts to feel low, they might have a lot of different symptoms, including getting a headache or feeling drowsy, weak, dizzy, or shaky.)
A diabetes bag usually has everything someone with diabetes might need in case of an emergency. It's normally packed with insulin and needles, a blood glucose meter and test strips, and something sugary to eat in case blood sugar levels drop really low. Chandler takes his diabetes bag along when he's away from his parents or school, like over at a friend's house or on a field trip.
At school, Chandler does his classwork just like everyone else, but when it's lunchtime he goes to the school nurse's office to get his blood sugar tested. When it's time to eat, the cafeteria staff helps him pick out the best lunch choice. Then, after he's finished eating, he goes back to the school nurse's office for his insulin shot.
Everyone thinks the school nurse is really cool. There are about five kids at Chandler's school who have diabetes, and the school nurse helps all of them pay attention to their blood sugar and gives them their insulin shots. She has even set up a club called "Sugar Busters" where they all get to hang out with each other after school one day a week!
Not only does Chandler get to hang out with other kids with diabetes at school, he's been going to camps sponsored by the American Diabetes Association since he was 4. The camps are held twice a year for kids with diabetes and their families, and they're a great chance for kids and families to hang out with each other. Chandler says, "They're a lot of fun! Especially because I can skate and swim, and also because I make new friends."
Chandler and his family do a lot to help find a cure and teach people about diabetes. They take part in most of the walks sponsored by the American Diabetes Association and the Juvenile Diabetes Research Foundation (JDRF). Chandler says, "Me and my family raise money for the diabetes walks every year and we were the top fundraising family for our team for the JDRF walk in September (2005)." Chandler and his family even got a Golden Sneaker Award for raising so much money for diabetes awareness.
And if that's not enough, Chandler has also helped collect donations from friends and family, and has raised money by selling diabetes bracelets!
Like Chandler, people with diabetes have to be more careful about their health and pay much more attention to what they're eating than most people. They also have to check their blood sugar levels a lot and get insulin shots. It's a lot of responsibility and the needles sure aren't fun, but Chandler still has a good time like every other kid.
If you ask Chandler what advice he has to give to other kids with diabetes, he says, "Don't be afraid to try new things. You can still have fun and do things you want to do. You just get used to it."
Reviewed by: Steven Dowshen, MD
Date reviewed: October 2015
|American Diabetes Association (ADA) The ADA website includes news, information, tips, and recipes for people with diabetes.|
|Children With Diabetes This website offers true stories about kids and teens who have diabetes.|
|Joslin Diabetes Center The website of this Boston-based center has information about how to monitor blood sugar and manage diabetes.|
|Juvenile Diabetes Research Foundation International (JDRF) JDRF's mission is to find a cure for diabetes and its complications through the support of research.|
|National Diabetes Education Program (NDEP) NDEP is a partnership of the National Institutes of Health, the Centers for Disease Control and Prevention, and more than 200 public and private organizations. Its mission is to improve the treatment and outcomes for people with diabetes, to promote early diagnosis, and to prevent the onset of diabetes.|
|When Blood Sugar Is Too High Too much glucose in the blood can be unhealthy. Learn more about what to do when blood sugar is too high in this article for kids.|
|When Blood Sugar Is Too Low Hypoglycemia is the medical word for low blood sugar level. It needs to be treated right away. Learn more about what to do when blood sugar is too low in this article for kids.|
|Medicines for Diabetes For most kids with diabetes, taking medicine is an important part of staying healthy.|
|Carbohydrates and Diabetes If you have diabetes, you might think you shouldn't eat carbohydrates (carbs) at all. But all kids, including kids with diabetes, can and should eat carbs as part of a healthy diet.|
|Diabetes: Dealing With Feelings Dealing with diabetes can stir up a lot of different emotions. Find out more about dealing with your feelings if you're a kid with diabetes.|
|Can Diabetes Be Prevented? Diabetes is a health problem that affects kids of all ages, but you can't catch it like a cold. In some cases, diabetes can be prevented. Find out how.|
|A Kid's Guide to Shots If you're old enough to read this, you've probably had most of your shots. But even bigger kids may need a shot once in a while. Find out more about them in this article for kids.|
|Diabetes Center Diabetes means a problem with insulin, an important hormone in the body. Find out how children with diabetes can stay healthy and do the normal stuff kids like to do.|
|About Recipes for Kids With Diabetes Just like everyone else, kids who have diabetes need to eat a variety of healthy foods. Give these nutritious recipes a try!|
|Diabetes Control: Why It's Important Keeping blood sugar levels under control can help keep you healthy and prevent health problems from happening down the road. Find out more.|
|Your Diabetes Health Care Team When you have diabetes, you and your family have a lot to learn. The good news is that people you can count on will help you understand diabetes and how to stay healthy.|
|Eating Out When You Have Diabetes Everybody loves to eat out. Can kids with diabetes go out to restaurants?|
|Type 2 Diabetes: What Is It? Diabetes is a disease that affects how the body uses glucose, a sugar that is the body's main source of fuel. Find out more about a kind of diabetes called type 2 diabetes in this article for kids.|
|Type 1 Diabetes: How Is It Treated? Kids who have type 1 diabetes need to take some important steps to feel good and stay healthy.|
|Type 1 Diabetes: What Is It? Thousands of kids all over the world have type 1 diabetes, a disease that affects how the body uses glucose.|
What to expect when coming to Akron Children's
For healthcare providers and nurses
Residency & Fellowships, Medical Students, Nursing and Allied Health
For prospective employees and career-seekers
Our online community that provides inspirational stories and helpful information.