There's a lot of disagreement among doctors when it comes to fibromyalgia. Theories differ as to what causes it and how best to treat it. There's even disagreement about what to call it — some call it a syndrome, others a disorder, still others a chronic condition.
Whatever you label it, and whatever its origins, fibromyalgia presents a very real challenge to those coping with its symptoms each day.
Fibromyalgia is one of the most common chronic pain conditions in America, affecting an estimated 5 million people and often running in families. It's far more common in females than males and can start when kids are in their teen years or even younger, although it's most common in women between the ages of 20 and 50.
Fibromyalgia (fy-bro-my-AL-ja) is a long-term, or chronic, syndrome that causes widespread pain in the muscles, joints, and other soft tissues of the body. The term "fibromyalgia" comes from the Latin word "fibro" for fibrous tissue, and the Greek "myo" for muscle, and "algos" meaning pain. In kids, it is sometimes referred to as juvenile primary fibromyalgia syndrome.
The pain of fibromyalgia is often accompanied by isolated tender or sore areas, fatigue, poor sleep, headaches, and other symptoms. Fibromyalgia is often considered a syndrome rather than a disease because it's a collection of symptoms that seem to be related but, unlike a disease, there's no cause that can be identified.
Although fibromyalgia is a chronic condition, its symptoms typically come and go. They can be mild at times, then so severe at others that they interfere with normal activities. Many kids with fibromyalgia can attend school regularly, but their abilities vary depending upon the severity of their symptoms.
Treatment for fibromyalgia focuses on managing the pain and other symptoms and generally consists of a combination of medications and lifestyle changes, such as exercise, relaxation, and stress-management techniques. There is no cure for fibromyalgia, but treatment has been shown to improve the quality of life for those who have it.
Most kids with fibromyalgia complain of widespread muscle pain, usually a dull or burning kind, but sometimes more of a shooting or throbbing pain. Widespread means the pain occurs on both sides of the body, above and below the waist; it can range from mild to severe.
Usually, someone with fibromyalgia will also have a number of tender spots, places where he or she feels pain if the spot is pressed. Common tender spots include the back of the head, between the shoulder blades, shoulders, chest, neck, hips, knees, and elbows.
Fatigue is another common complaint of kids with fibromyalgia. Because of this, fibromyalgia can mimic the symptoms of a similar condition called chronic fatigue syndrome. Sometimes, a person can have both conditions, but they are separate syndromes.
Fibromyalgia also usually causes sleeping problems that make getting a good night's sleep difficult. Some kids may have other sleep disorders like restless legs syndrome and sleep apnea. Poor sleep can also lead to waking up with body aches and stiffness that may improve during the day, then get worse at night.
Additional symptoms of fibromyalgia can include:
People with fibromyalgia often notice a variety of external factors that can make their symptoms worse, from emotional stress to cold, damp weather.
Doctors aren't really sure what causes fibromyalgia, but most agree that the brains of people who have it perceive pain differently. For some reason, they experience pain in response to stimuli that aren't normally perceived as painful by others.
Some cases of fibromyalgia seem to be triggered by an event — like an infection or illness, physical injury, or emotional upset. Genetic factors also might play a role. Fibromyalgia tends to run in families, so it's possible that having a genetic mutation may increase someone's risk of developing the condition.
If your child seems to be suffering from one or more of fibromyalgia's major symptoms — such as chronic muscle pain, fatigue, or disrupted sleep — contact a doctor. While there's no specific test to diagnose fibromyalgia, a doctor can run tests to rule out other possible causes, such as thyroid disorders, infectious diseases, or rheumatic diseases (like juvenile idiopathic arthritis).
Since fibromyalgia can't be confirmed by any laboratory tests and has few, if any, visible signs, it can be difficult for doctors to diagnos the condition. This can be frustrating for someone who has it. Some estimates claim that it takes an average of 5 years for someone with fibromyalgia to get an accurate diagnosis, and many doctors are still undereducated about the subject.
Doctors make a diagnosis of fibromyalgia in a child based on the child's medical history, his or her description of symptoms, and a check of 18 usual tender spots. Most kids with fibromyalgia will experience pain when pressure is applied to at least five of the tender spots, and will have widespread musculoskeletal aches lasting for at least 3 months. If there is no tissue swelling and conditions with similar symptoms can be ruled out, fibromyalgia might be determined to be the cause.
Fibromyalgia can't be cured, but treatment can help manage symptoms, minimize pain, and improve a child's overall health and quality of life. Treatments for fibromyalgia include both lifestyle changes and medications.
Before trying medications, most doctors will want to start with home remedies for a child, such as:
Some kids also find that changing the way they think about their condition helps improve their symptoms. Cognitive-behavioral therapy (CBT), a therapy administered by mental health professional, can be successful in helping kids learn to filter out negative thoughts, recognize what makes symptoms worse, and set limits to keep symptoms in check.
If these steps aren't enough to manage fibromyalgia symptoms, the doctor may prescribe medications. Some of the more common ones prescribed to treat fibromyalgia are:
In addition to helping your child manage the symptoms of fibromyalgia, it's also important to provide the necessary emotional support. Talking about the condition and coming up with coping strategies together can help.
Many young people also find that support networks of their peers, as well as counseling from a trained psychologist, can help them learn to manage their symptoms, feel better, and have a more positive outlook on life.
Reviewed by: Elana Pearl Ben-Joseph, MD
Date reviewed: September 2012
|National Institute of Arthritis and Musculoskeletal and Skin Diseases This Web site provides the latest information about the treatment and prevention of arthritis and musculoskeletal and skin diseases.|
|Chronic Fatigue Syndrome Chronic fatigue syndrome (CFS) is a complicated disease for doctors to diagnose — and even fully understand. Find out more about this often misunderstood condition.|
|The Story on Stress Stress happens when you are worried or uncomfortable about something. You may feel angry, frustrated, scared, or afraid. Our article for kids will help you manage stress.|
|Fibromyalgia Fibromyalgia is a long-term condition that causes pain in a person's muscles, joints, and other soft tissues. Find out how doctors tell if a person has fibromyalgia and what can be done to treat it.|
|Going to a Physical Therapist Physical therapy uses exercises and other special treatments to help people move their bodies. Find out more in this article for kids.|
|Chronic Fatigue Syndrome At least 1 million people in the United States have chronic fatigue syndrome, a condition that makes it difficult to perform everyday tasks. Read more about CFS.|
|Physical Therapy Doctors often recommend physical therapy for kids who have been injured or have movement problems from an illness, disease, or disability. Learn more about PT.|
|Physical Therapy Physical therapy helps people get back to full strength and movement - and manage pain - in key parts of the body after an illness or injury.|
|Guillain-Barré Syndrome Guillain-Barré syndrome is very rare. It can be frightening because it often causes some type of paralysis. Luckily, most people who get GBS recover.|
|Childhood Stress Being a kid doesn't always mean being carefree - even the youngest tots worry. Find out what stresses kids out and how to help them cope.|
|Stress There's good stress and bad stress. Find out what's what and learn practical ways to cope in this article.|
What to expect when coming to Akron Children's
For healthcare providers and nurses
Residency & Fellowships, Medical Students, Nursing and Allied Health
For prospective employees and career-seekers
Our online community that provides inspirational stories and helpful information.