Osteogenesis Imperfecta Clinic

The Osteogenesis Imperfecta (OI) Clinic at Akron Children’s Hospital is the only service of its kind in a multi-state region, providing comprehensive treatment for children affected by this genetic disorder. Read More...

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Schrader William
William Schrader, MD
Clinical Co-Director, Center for Orthopedics and Sports Medicine

Bober Michael
Michael Bober, MD, PhD
Genetic Consultant, Skeletal Dysplasia Center

Nicholas Susan
Sue Nicholas, MSN, WHNP-BC, CCCCTM
Women's Health Clinical Nurse Practitioner

Bailey Lindsay

Broerman Lisa
Lisa Broerman, LISW
Social Worker

Leslie Shannon

Woods Susan
Susan Woods, MS, LGC
Licensed Genetic Counselor



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Overview

The Osteogenesis Imperfecta (OI) Clinic at Akron Children’s Hospital is the only service of its kind in a multi-state region, providing comprehensive treatment for children affected by this genetic disorder.

Because this condition alters the structural integrity of bone, resulting in weak bones that fracture easily, patients diagnosed at birth typically suffer fractures during delivery. Children with milder forms of this condition may not be diagnosed until they start walking and experience routine falls. These children may also be of short stature, have hearing loss, brittle teeth or spinal curvature.

More severe forms of the condition may include life-threatening symptoms such as respiratory and cardiac complications.

A multidisciplinary team provides the best possible outcomes for patients and their families. The OI clinic includes specialists from orthopedics, genetics, maternal fetal medicine, physical therapy, nutrition and social work.

For more information about the OI clinic, visit the What to Expect tab or call 330-543-0735.

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What To Expect

In the OI clinic, patients see each specialist one-on-one. A pediatric orthopedic surgeon assesses the bones, joints and spine for normal growth and development. Surgery may be necessary to repair acute fractures or to insert growing rods that correct deformities and prevent future fractures.

  • The pediatrician manages patients’ ongoing health needs and coordinates care with the rest of the team.

  • The dietitian discusses ways to increase calcium and Vitamin D intake.

  • The physical therapist recommends needed equipment and protective positioning and helps patients find safe activities they enjoy.

  • The social worker addresses the psychosocial aspects of living with OI and can link families to special services or help with insurance issues.

  • A clinical geneticist evaluates the need for genetic testing and counseling.

If OI is suspected, patterns in the bones, as well as biochemical or molecular tests, can confirm the diagnosis, although patients with mild forms may test negative.

If treatment is needed, patients may receive infusions of bisphosphonates to build bone mass as much as possible before they reach puberty. DEXA scans are used to establish a baseline of bone health and monitor treatment progress by measuring a patient’s bone density.

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Osteogenesis Imperfecta Clinic
our locations

Akron Children's Hospital
Center for Orthopedics & Sports Medicine
Considine Professional Building
215 W. Bowery St., Suite 7200
Akron , OH 44308
Phone: 330-543-3500
Alt. Phone: 1-866-760-1950
Fax: 330-543-5001
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