Community Outreach of Akron Children's childhood cancer and blood disorder center

Hemostasis and Thrombosis Center

Outreach is a key component of comprehensive, family-centered care at Akron Children’s Hemostasis and Thrombosis Center. The outreach nurse educator develops and provides ongoing education for patients and families, as well as the community.

Individual educational sessions are held with newly diagnosed patients at clinic and home visits. To provide support and encourage networking with other patients and families with bleeding disorders, the outreach nurse educator collaborates with our community-based partner, the Northern Ohio Hemophilia Foundation (NOHF).

First Step is a collaborative program that focuses on families with infants or young children newly diagnosed with bleeding disorders. Two First Step programs were hosted by Akron Children’s Hemostasis and Thrombosis Center staff with 45 patients and family members attending.

Women’s Task Force is a collaborative effort to increase awareness in the community and to educate women and their healthcare providers about diagnosing and treating bleeding disorders. Two staff members from Akron Children’s Hemostasis and Thrombosis Center serve on the NOHF Women’s Task Force. The Women’s Task Force hosted one educational presentation, “Recognizing Bleeding Disorders in the Dental Patient,” presented by Akron Children’s outreach nurse educator Irene Boehlefeld, BSN, RN, CPON, and attended by 50 dental professionals.

Other center outreach activities held in 2011 included:

Community Outreach

Region VI Sickle Cell Program

Akron Children's sickle cell outreach education program provides education and raises awareness about sickle cell disease and sickle cell trait. In 2011, outreach educational programs were conducted through:

School and Community Oncology Outreach Program

Akron Children's School and Community Oncology Outreach Program (SCOOP) raises awareness about childhood cancer in schools and communities, while dispelling myths and misconceptions.

The SCOOP program staff consists of Melinda Aylward, BSN, RN, CPON, oncology outreach coordinator, and Carla Lukens, a certified teacher, who serve as advocates for children and families by supporting the social and academic needs of pediatric cancer patients.

The program works to facilitate a smooth school re-entry for cancer patients after a prolonged absence due to treatment. Ms. Aylward and Ms. Lukens focus efforts on helping children complete schoolwork while undergoing treatment, maintaining their relationships with school and friends, and ultimately, making a smooth transition back to school.

Ms. Aylward advocates for classroom accommodations for patients, including scheduling and attending meetings to establish individualized education plans (IEPs).

In 2011, outreach activities included:

Community Outreach
Publication: Showers Family Center Newsletter
Issue: 2011

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