Implementation of a US/Canadian Diagnostic Registry of Children with Chronic Vasculitis

Description:
Childhood chronic vasculitis is the name of a group of life-threatening diseases that have in common inflammation of blood vessels in many important body parts such as kidneys and lungs. These diseases continue into adulthood, and children need long-term treatment and monitoring. The purpose of this project is to develop a safe, private computerized database of health information of children with chronic vasculitis, which will allow researchers to answer questions about how similar or different children with this disease are compared to adults and how long it takes doctors to recognize these diseases in children.

Full study title:
ARCHIVE (A Registry for Children with Vasculitis: e-entry) Implementation of a US/Canadian Diagnostic Registry of Children with Chronic Vasculitis

IRB Study ID:
080502


Who may qualify:

Patients with chronic vasculitis

Who does not qualify:

Patients without the diagnosis of chronic vasculitis

If you are interested in this study or have questions about your child's eligibility, please contact:

Rebecca D. Considine Research Institute, 330-543-5012

For urgent patient care matters involving a current study patient, please call: 330-920-5774


Lead Principal Investigator:

Photo
Mary Bratovich Toth, MD
Director, Pediatric Rheumatology
Medical Staff, President


Bookmark and Share

iGrow iGrow
Sign up for our parent enewsletter
    Contact Us

    330-543-5012

    E-mail

    find a location
    Find a location Type the first 3-5 letters of a specialty, service or location:
    Or, view: a map, a list of all locations, locations by city or locations near me.
    find a doctor
    Find a doctor Type the first 3-5 letters of the name, location or specialty:
    Or, view a list of all doctors by name, location and specialty.