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Despite being born with a rare genetic anomaly and battling several chronic health conditions, Nathan continues work hard and overcome hurdles into his teens.
In 2017, Zoey was diagnosed with idiopathic scoliosis and had surgery at Akron Children’s Hospital to correct two significant curvatures in two different spots. After the surgery, with a lot of hard work, she was to work towards her dream of playing college volleyball and is now on scholarship at Ashland University.
Since his first seizure at 9 months old, Luke has been diagnosed with cerebral palsy, epilepsy, mitochondrial disease, CVI, scoliosis and impaired airway clearance. Luke has been hospitalized many times in his 23 years for seizures, lung infections, surgery complications and other issues. Despite all of these concerns, Luke continues to smile and work hard.
Born at 27 weeks, Tyler was born with and continues to deal with many disabilities throughout his life. Now 18 years old, he is ready to graduate high school with honors, despite the many challenges he has faced.
Pamela's daughter Katherine struggled to breathe, eat or even move when she was born. She spent several weeks in NICU where doctors diagnosed her with arthrogryposis, a muscle disorder that causes muscle weakness and contractures. She has been a frequent visitor to Akron Children's over the years for a variety of complications and chronic conditions, but has emerged as a resilient, energetic 16-year-old high school freshman.
Robin's daughter Casey was born with Prader Willi syndrome, a rare condition affecting the 15th chromosome. She has also been diagnosed with hypothyroidism and has had several surgeries to correct scoliosis caused by the syndrome. Now in her teens, she is very active as a Girl Scout, in Dance Unlimited, and Girl Talk.
